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Thread: Think im getting a cold

  1. #11
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    Hello Lisa,
    I hope you feel better soon.
    Love Sheila

  2. #12
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    Hi Lisa,

    Hope you're on the mend soon. It's always best to get things checked out and I think GPs prescribe antibiotics to us folks with MND easier than they would to other people, as a precaution.

    Not great about your carers however. You would imagine hygiene and not visiting when unwell would be a care agency rule and it's a sensitive subject to broach.

    Anyway its lovely to hear from you back on the forum and here's hoping you're better soon.
    Love Debbie x

  3. #13
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    Thankyou Debbie, that's a lovely thing to say xx I had a good result from yesterday's emails, handwashing, glovesl changes and masks this morning! I guess they'd potentially be liable if they couldn't demonstrate appropriate hygiene practices?

  4. #14
    Forum Member Ellie's Avatar
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    Crikey Lisa, wasn't the carer even changing her gloves?? Gross!! (I wanted to say more than "crikey" but swearing isn't allowed ) I've visions of her coughing into a gloved hand then carrying on with the same glove...

    In my house: carers wash their hands on arrival before even touching my clothed body.
    They wear gloves only for personal care and bin them immediately after use. They wash hands again after touching the bin.
    Hands are washed before and after food prep, feeding me, preparing and giving me meds, after sweeping the floor, blowing their noses (hay fever) and after petting the dog - to name just some examples of how often they need to wash their hands, hence the hand cream I provide!!

    Gloves, by the fact they sit in an open box and are taken out by a potentially dirty hand with the risk of transferring dirt to other gloves, are not always clean. My carers practice a "Clean Hands Policy", which I believe is better.

    I would have absolutely no problem in politely asking a carer to wash their hands or change their gloves at any stage - it's really important that your priority is to stay well, whatever it takes.

    Yes, care companies have a duty of care to you and that includes not knowlingly exposing you to harm. I've mentioned before that I've a paragraph in my care plan explictly saying that staff with coughs, colds, chest infections could be detrimental to my health. I've also explained to all my carers why it's important I stay healthy and they all totally understand.

    I'd say you should talk to your carer with COPD and explain why hygiene and chest health is of utmost importance to you - she should understand more than most, as she is also at risk. People with COPD have an increased risk of lung infections and pneumonia. BTW, did you get the PPV23 Pneumonia one-off vaccine yet?

    I know I sound fanatical about hygiene, infections and masks but, given that a chest infection could kill me, I think I'm justified in my stance...

    Good luck.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  5. #15
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    [QUOTE=Ellie;92185]Crikey Lisa, wasn't the carer even changing her gloves?? Gross!! (I wanted to say more than "crikey" but swearing isn't allowed ) I've visions of her coughing into a gloved hand then carrying on with the same glove...

    That happened, I became ill in the late afternoon that day. Possibly from hospital visit earlier that week though?
    But yes, their hygiene has been dreadful, I'm only just realising how vulnerable I am.
    They must have food hygiene certificates? That doesn't mean the use of non sterile gloves, like you say, easily contaminated. Im going to get in touch with the palliative team tomorrow , with the autism thing i might well put my foot in it with the care agency.

  6. #16
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    Very much appreciated, thankyou ellie and for your tips about talking to the carers

  7. #17
    Forum Member Ellie's Avatar
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    Given that carers in the UK need no formal carer qualifications, I doubt they need any food prep related certs

    It's basic common sense but, as we all know, can be sadly lacking in some carers, so Lisa, if you aren't comfortable with anything a carer does, do tell them and explain why. It really helps both of you if you're open and honest with them - and that may include asking your palliative care nurse to explain to the carer that you may sometimes put your foot in it by not wording things properly.

    Big hug to you.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  8. #18
    Forum Member Ellie's Avatar
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    Hi Lisa,

    Hope you're feeling a bit better and that your big girl got on well on her first day of secondary school

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  9. #19
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    Thankyou lovely x we're busy putting labels in uniform (well, im giving instructions &#128514and arranging the little big ones to walk together. Fingers crossed for tomorrow!

  10. #20
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    Im feeling loads better, went to brownsea island today,saw a red squirrel!

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