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Thread: Think im getting a cold

  1. #31
    Forum Member
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    Feb 2019
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    Hi Terry and Debbie,
    Thanks, my chest feels hot and hurts if I try and cough. I will take it easy this weekend and rest up.
    Have a good weekend whatever you are doing.
    Love Sheila x

  2. #32
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    Jun 2018
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    I don't get looked after, properly just resentment and anger, its been horrible.

  3. #33
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    Get well soon sheil a xx

  4. #34
    Forum Member Terry's Avatar
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    May 2012
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    Hi Catsparkle,

    Sorry to hear that it is always a worry for me but true for you. Have you got anyone to turn to.

    I guess it's the carer's that are treating you badly. Don't know if the Mnda can help. Ellie seems to get rolls roice care out there but it is quite difficult to get any thing near that in a lot of the UK.

    Hugs Terry
    Last edited by Terry; 7th September 2019 at 00:41.

  5. #35
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    I am really sorry to hear that Lisa. I hope things get sorted for you.
    Love Sheila.

  6. #36
    Forum Member Gillette's Avatar
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    Hi Catsparkle,

    I'm sorry that your care is nowhere near what you need or would like. I hope you have someone that you can talk to about it.
    Dina


    Trying to keep positive, but not always managing.

  7. #37
    Forum Member Ellie's Avatar
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    Oct 2012
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    Lisa, that's awful - I'm sorry you have to put up with that negativity. It must drain the life out of you

    IDK what to advise but this cannot continue - can your district nurse, MND nurse or social worker liaise with the care provider on your behalf?

    If you have a choice, it could mean starting over with a new provider, but you do not have to put up with such an ignorant 'carer'.

    Good luck and giving you a big Ellie Hug xx

  8. #38
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    Jun 2018
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    South Coast
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    Its my family rather than the carers, I'd love to have the carers in more so I can stop feeling apologetic about asking for basic needs, food,drink,hot cold, healthy food i ts been awful to lose all independence before i was this disabled because it was 'too difficult '
    On the other side, we had to move in with them because i couldn't get in to my flat and they have a tiny bungalow.

  9. #39
    Forum Member Ellie's Avatar
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    Oct 2012
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    Oh I'm with you completely on that Lisa - sorry for getting the wrong end of the stick on your post.

    I'll think of myself as an inconvenience and a burden on my family until the day I die, so I can only imagine how hard it must be with the added stress of living in such close quarters

    I rely on my carers for everything and when they're not around, I tend to 'shut up and put up', unless it's absolutely necessary (which will surprise some fellow members ) and am so apologetic for disturbing my husband etc.

    Any idea when your place will be sorted?

    Hope you're feeling a bit better today.

    Love Ellie.

  10. #40
    Forum Member Kayleigh's Avatar
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    Nov 2018
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    Hi Lisa

    I'm so sorry that life has become difficult staying with your family. Im sure they love you very much but sometimes the pressure of challenging circumstances can make even the closest of relationships become strained.

    I hope when you move into your new flat it will improve the relationship between you and your parents and make life much more comfortable for all of you.

    Just a thought - if your carers are funded by your local authority (or funded by the NHS under the Continuing Healthcare Scheme) perhaps it might be possible to get the carers hours increased sometime soon.

    I don't know how often someone's care plan can be reviewed but it might be something you could look into, especially if your care needs have increased since your last assessment.

    Love and hugs,
    Kayleigh x

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