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Thread: Quick hi & intro!

  1. #11
    Forum Member
    Join Date
    May 2018
    Posts
    383
    Hi Sarah and welcome to the forum,

    I am so sorry for your diagnosis and I imagine, after just a month you are still reeling from the shock. It's good you've posted because this is a great place for support and practical advice. You seem to have a positive and proactive approach , and that will really help you too.

    I found the early days and the contact with the MND team totally overwhelming because there was so much advice but now my physio, nurse and OT are on my favourites contacts ( even if I am not on theres !) They are always there no matter how small the problem so I hope you get this support in place too.

    Take Care of yourself , Sarah and Sue too.
    Love Debbie x

  2. #12
    Forum Member
    Join Date
    Sep 2019
    Posts
    6
    Thanks so much Debbie. Youre absolutely right - all the health visits we e had has been somewhat overwhelming- as welcome as they all are. Im in Cardiff and will have access to an MND clinic so will receive excellent support, for which I am so grateful.

    Staying upright is becoming more of an issue as Im increasingly unsteady on my feet. My OT is coming next week to discuss options with me.

    Thanks again for your welcome. Xx

  3. #13
    Forum Member
    Join Date
    Jul 2018
    Posts
    27
    Hello Sarah. Hope you, and Sue, can stay positive, that really is a hugely important thing if you can do it. My pet dogs also help in that regard. My walking and balance are terrible, but, getting towards 8 years now and my hands and arms are good, and no dramatic changes, so there is hope. I use a boot scooter, which we can take out in the car, not too heavy, and does 14 miles on a battery charge.
    Love Olivia.

  4. #14
    Forum Member
    Join Date
    Sep 2019
    Posts
    6
    Hi Olivia. Thank you so much for the advice - & for giving me hope! Im looking into a scooter for the same reason and that sounds perfect. Were staying as positive as possible, not least as Im learning that my mental state significantly affects my physical state. Thanks again for the hope. Love, Sarah xx

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