Hi Chris

Welcome to this forum and I hope you make good use of it. The forum is full of people who have experienced a wide range of symptoms and range from slow progression to fast. I hope your progress remains as slow as it seems to be up to now. But just in case make sure you have met your community team of physios, speech therapists and occupational therapists. Personally I find the OT invaluable when you experience some changes in your symptoms or if a new part of your body is affected. Keep in touch with us all.