Hello peeps.

I have set up a public group on kik (a messenger app) for anybody suffering or caring for someone with this horrible disease.

I just though it would be a good way to share our experiences or struggles on a day to day basis. Just download the app, set up a profile and then search for the public group.

Group name MND or ALS (people caring for or suffering from this disese)
#mndals

Hope yo see some of you there as I'm sat on my lonesome in this room.

Stay strong

Steve