Hello peeps.

I have set up a public group on kik (a messenger app) for anybody suffering or caring for someone with this horrible disease.

I just though it would be a good way to share our experiences or struggles on a day to day basis. Just download the app, set up a profile and then search for the public group.

Group name MND or ALS (people caring for or suffering from this disese)

Hope yo see some of you there as I'm sat on my lonesome in this room.

Stay strong