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Thread: Liquid paracetamol / sore throat

  1. #11
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    Don't worry Sarah, we share all sorts of worries on here, and lots of rants. There is always kind words and advice. We all get our very bad days, but what can we do. Just try and take one day at a time.

    Love Sheila

  2. #12
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    All the best for tomorrow, Sarah. Hope all goes well and you're back home soon.

    Theres no need to say sorry on here. I dont think theres such a thing as making a fuss with MND as every new symptoms is scary, whether it's related to our MND or not. It's understandable that you're feeling anxious and overwhelmed and it's especially hard if you're not getting the right pain relief.

    Love Debbie x

  3. #13
    Forum Member Gillette's Avatar
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    Hi Sarah,

    All the best for tomorrow. I had a PEG fitted four weeks ago and was pleasantly surprised at how easy it was - and I am the world's worst coward when it comes to having medical things done. In fact, years ago a consultant carried out an operation under a general anaesthetic because he said I wouldn't be able to have the lesser treatment because I was shaking so much with fear when all he was doing was examining me, So, when I say it was a doddle, it really was!
    Dina


    Trying to keep positive, but not always managing.

  4. #14
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    Hi Sarah

    I hope that the Peg goes well. With that in place you might be able to take liquid medications through the tube. If that's not possible I have found using a straw to suck up liquids is easier than using a syringe. I use a big straw used for smoothies for thick liquid. This depends on weather your suction is strong enough and if you are getting a feeding tube fitted it might not be but it is worth considering.

    Mick.

  5. #15
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    Hi everyone, thanks for your encouraging words. Im so touched by how caring this Forum us. As it happens , when I went in yesterday they ended up not having a bed for me but promised me one today. So returned today and actually had the endoscopy procedure but they couldnít fit the peg as my stomach wasnít accessible- so Iím going to have to have it done surgically instead. After all that! The endoscopy bit was horrible again today but the care I received was outstanding.

    To be honest, it's most likely my own fault they couldnít do it as Iím overweight. Oh the shame!!

    Has anyone had a peg fitted surgically? Whatís it like? Any info gratefully received.

    Thank you
    Sarah xx

  6. #16
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    Hi Sarah,
    Wow, you have been through it, these last few days, I am sorry that happened to you. I am sorry I can't help you with the surgically fitted peg. I am sure someone on here can. Are you at home now?
    Thanks for keeping us updated
    Love
    Sheila xx

  7. #17
    Forum Member Ellie's Avatar
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    Hi Sarah,

    First of all, there's no fat shaming here!!!

    I know belly fat can be an issue in placing a feeding tube but, in general, the extra weight can be a positive thing in MND.

    The endoscope has a light on its tip which is used to illuminate the abdominal wall. If the light from the scope isn't visible from the outside of the tummy, the surgeon can't see a safe tract and so has no guide for tube placement.

    I am no surgeon, but typically the more 'surgical' approach involves making a larger incision than usual, so the stomach can be identified and the surgeon can see a safe tract to the skin for the tube. Then the tube procedure proceeds as normal.

    You should ask the doctor to explain what will happen as it may be different to what I've described!! Also ask if it'll be done under a general anaesthetic - it probably will be.

    Best wishes.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  8. #18
    Forum Member Terry's Avatar
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    Hi Chimp;

    Can't they just do the normal RIG small opp?

    Love TC

  9. #19
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    Hi Sarah

    Sorry to hear that the procedure was canceled. That must have been a bit of a shock for you. I think Terry has a good point about a rig instead. I have a rig and the actual procedure was quick and straight forward. Does anyone know if there are any advantages of one over the other?

    Mick.

  10. #20
    Forum Member Ellie's Avatar
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    Quote Originally Posted by Terry View Post
    Can't they just do the normal RIG small opp?
    I guess that's the Surgeon's call - it all depends on being 100% sure in getting safe anatomical access to the stomach.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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