Originally posted by matthew55
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No I ‘passed on’ to Steve Barry’s happy birthday message to him as he’s not on the forums nor will he ever be, Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes. -
Have loved reading the good things for you all, great stuff. I have just had a lovely weekend visiting (thanks to my son driving), my 42 year old daughter who has just given birth for first time. e082892f-46b2-45c3-8f33-4f2745dbd889.JPGDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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That’s a lovely photo Heather. You must be a very proud grandma.Originally posted by Heather R View PostI’m going to do this even if it kills me!Comment
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What a little darling. Bless 😚when i can think of something profound i will update this.Comment
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Congratulations nanna or grandma (whichever you have chosen) and of course your daughter. Lovely baby photo, Lynne xOriginally posted by Heather R View Post
ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Heather R Oh how wonderful Heather, congratulations! Your daughter must be over the moon with joy.
Thank you so much for posting the photo.
Love Ellie.Diagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Huge congratulations to you and your family Heather. You must be bursting with pride !
Absolutely adorable baby... Gorgeous! Thank you for sharing with us.
Love Debbie xComment
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Cuteness overload....
Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.
Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.pngComment
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This morning, for the first time this year, i had breakfast sitting in my wheelchair in the garden.
DougDiagnosed April 2017Comment
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Absolutely brilliant Doug. So pleased you got out 😎Originally posted by Doug Carpenter View PostComment
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That sounds great thing to do, I love my garden. So glad you’re well enough again to enjoy that. XDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Thanks Bowler. It was one of those now or never moments.
DougDiagnosed April 2017Comment
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Doug Carpenter thats a lovely cheerful post. Enjoy the 🌞Diagnosed May 2021 bulbar onset als.Comment
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Doug Carpenter Considering how you were 10 weeks ago, it’s testament to your strength of character that you ate breakfast in your garden today - go you 👍👍 🤗😘
Diagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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