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Thread: Celebrate the GOOD THINGS

  1. #11
    Soaked to the skin!

    Oh dear! That's not good. You must be careful Dina. Pleasures can have unforeseen consequences.

    Doug

  2. #12
    Forum Member Gillette's Avatar
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    Quote Originally Posted by Doug Carpenter View Post
    Soaked to the skin!

    Oh dear! That's not good. You must be careful Dina. Pleasures can have unforeseen consequences.

    Doug
    I've only just seen this, Doug, but if you find me some pleasures I will happily suffer the consequences. Ha ha ha.
    Dina

    Trying to keep positive, but not always managing.

  3. #13
    Forum Member Gillette's Avatar
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    Today's good news (I' e trying to get online for hours to post it) is that the doctors on the ward are angry about the way I have been treated by the CHC. Although there is almost nothing they can do to speed up the process, they are submitting an incident report telling the CHC about the seriousness of the psychological and physical deterioration I have suffered since the Fast-Track application was submitted on 16 September.

    Although this is unlikely to do much for me, it may help other MND sufferers in the future.

    Perhaps there is light at the end of the tunnel and It could be Christmas, rather than Easter!
    Dina

    Trying to keep positive, but not always managing.

  4. #14
    Forum Member Ellie's Avatar
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    Hopefully their intervention will make a difference for you Dina.

    I've everything crossed for you.

    Big hug.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  5. #15
    Forum Member Terry's Avatar
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    It can't do any harm, Dina;

    But I reckon they are doing it for their benefit as well as yours.

    Love Terry

  6. #16
    Forum Member Gillette's Avatar
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    Thanks, Ellie. If or when I hear anything, I shall be shouting it from the rooftops!

    Terry, I don't care if they are because I feel very supported by them.
    Dina

    Trying to keep positive, but not always managing.

  7. #17
    I hope their intervention does help, Dina. It is truly awful how you have been treated.
    Chrissie xx

  8. #18
    Forum Member Gillette's Avatar
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    Thank you, Chrissie.

    Even though funding still hasn't been approved the first group of carers is coming in for training today, which shows remarkable trust on the part of the care company .

    I hope you and Douglas are settling in withyour new routine.

    Make sure you take very good care of yourself.
    Dina

    Trying to keep positive, but not always managing.

  9. #19
    That's terrific news Dina!

    I am so relieved. One step at a time and all that.

    Fingers crossed!

    Doug

  10. #20
    Forum Member Gillette's Avatar
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    Quote Originally Posted by Doug Carpenter View Post
    That's terrific news Dina!

    I am so relieved. One step at a time and all that.

    Fingers crossed!

    Doug
    Thank you, Doug. Don't worry, i'm not counting my chickens!

    I have a theory that the reason I'm still here is that the doctors and staff all love me so much that they can't to see me go! But I may have got that wrong. They reminded me yesterday that my hospital number includes '666', the sign of the Beast! Ha ha ha.
    Dina

    Trying to keep positive, but not always managing.

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