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Thread: Celebrate the GOOD THINGS

  1. #21
    Forum Member Gillette's Avatar
    Join Date
    Mar 2019
    Greater Manchester

    Amazing news


    I'll probably be going early next week, as long as the carers all get signed off for their me-specific training.

    Can you tell I'm pleased?

    Trying to keep positive, but not always managing.

  2. #22
    Forum Member Terry's Avatar
    Join Date
    May 2012
    I don't believe it, Dina;

    Pleased pleased pleased, for you.

    Hugs Terry

  3. #23
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Oh Dina, I could weep for joy

    There weren't any 'you-specific' issues raised so far, so hopefully there won't be any last minute glitches.

    Will they give you any meds you're due (through feeding tube)?

    If the food pump comes up as an issue, Nutricia Homeward are excellent (at least, here they are) and willingly come to train carers, if necessary.

    If there is a bit of a delay in getting the right carers with the right training, don't panic, it'll be worth an extra few days in there and go home to a proper care set up.

    The main thing is that the CHC is FINALLY approved - and I am almost as happy as you are

    Onward and upwards.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  4. #24
    Fantastic news!

    It's made my day too.

    Doug x

  5. #25
    Forum Member
    Join Date
    May 2018
    Absolutely delighted for you Dina, If anyone deserves good news it is you !

    Well done for starting this thread because I am sure we'll all have a little celebration of your news,

    Love Debbie x

  6. #26
    Forum Member Barry52's Avatar
    Join Date
    Mar 2012
    Newark on Trent
    Fantastic news Dina and long overdue.

    Once you are home you can live life how you dictate. I expect you won’t have as much time to write all the stories that keep us entertained or even those that anger us on your behalf.

    Barry x
    Iím going to do this even if it kills me!

  7. #27
    Forum Member Kayleigh's Avatar
    Join Date
    Nov 2018
    Quote Originally Posted by Gillette View Post

    I have a theory that the reason I'm still here is that the doctors and staff all love me so much that they can't to see me go! But I may have got that wrong. They reminded me yesterday that my hospital number includes '666', the sign of the Beast! Ha ha ha.
    Hi Dina,

    I think that was the Doctors just being cheeky and 'Number 46' with their joke about the number 666. All of them have told me they really think you are as cute as 'Number 42'!

    I'm glad the doctors have been so supportive - and after your very good news today, perhaps their intervention helped and the CHC decision makers did follow 'Number 9', in the end!

    If you are not familiar with Bingo calls, please click on the link below:-

    I am so happy about your good news, that I could 'Number 35' - and was so pleased and excited when I read about it, I nearly spilled my 'Number 3'! LOL

    Hopefully you will be home very soon - back to your home comforts and where you can enjoy plenty of quality time, including 'Number 41', with your family and friends.

    .. and if you hear a 'Number 4', it might be me Trick or Treating?!! You can join me, if you like? I might have to ask TC if I can borrow his sweet-talking talking-machine though - as with my slurred speech, we'd be more likely to end up with lots of Teats, rather than Treats! LOL

    Sending you lots of love and 'three score and ten' congratulatory hugs!

    Kayleigh x
    Last edited by Kayleigh; 16th October 2019 at 16:34.

  8. #28
    Forum Member
    Join Date
    Feb 2019
    Great news Dina, so pleased for you.
    Love Sheila x

  9. #29
    Forum Member
    Join Date
    Jul 2019

    That is freaking awesome news, wohoo, yippee, absolutely fantastic )
    You are my something good today

  10. #30
    Forum Member Gillette's Avatar
    Join Date
    Mar 2019
    Greater Manchester
    Hello, everyone,

    Thank you for your lovely messages and for the support I have received from you over these difficult weeks.

    Trying to keep positive, but not always managing.

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