Page 1 of 3 123 LastLast
Results 1 to 10 of 22

Thread: Panic attacks

  1. #1
    Forum Member
    Join Date
    Dec 2019
    Posts
    31

    Panic attacks

    my Mam has progressive bulbar MND and was diagnosed 3 weeks ago. Her breathlessness is getting worse. She couldn’t breathe on Saturday and we rang an ambulance who said it was a panic attack as she couldn’t get her breath. Her oxygen levels were fine but it was terrifying. She has just had another one and I followed the nurse guidance and have calmed her down with getting her to copy my breathing. She is now sleeping (with me watching her). Any advice would be great please as this is so frightening.

  2. #2
    Forum Moderator MNDConnect's Avatar
    Join Date
    Mar 2016
    Location
    Northampton
    Posts
    236
    Hi Lesley

    This must be very frightening for both you and your mam. Does anything in particular seem to trigger the attacks?

    Does she become breathless because of the attacks or is she breathless even when she is calm?

    There are medications which can be prescribed that can be given to someone if they are feeling panicked and are struggling to calm down. They are taken only when they are needed and it can sometimes be a reassurance just to know that you have them around if they are needed.

    Rachel

  3. #3
    Forum Member
    Join Date
    Dec 2019
    Posts
    31
    Hi Rachael

    Thanks for responding. her breathing is getting worse. Today’s happened just as she had taken her dietary drink shot which she absolutely hates. She was gagging and was almost sick. She then started fighting for breath.

  4. #4
    Forum Moderator MNDConnect's Avatar
    Join Date
    Mar 2016
    Location
    Northampton
    Posts
    236
    Hi Lesley

    Is the dietary drink shot a supplementary drink that she drinks slowly or is it a quick shot of something? It sounds as though this may have been the trigger. Has she had a recent swallowing assessment? Does she ever cough whilst she's eating or drinking or is she feed through a feeding tube?

    Rachel

  5. #5
    Forum Moderator MNDConnect's Avatar
    Join Date
    Mar 2016
    Location
    Northampton
    Posts
    236
    Sorry, I'm bombarding you with questions. I'm happy to give you a call to discuss this if you'd like to. Please just private message me your telephone number. Or please feel free to give us a call on 0808 802 6262. We are here until 5pm.

    Rachel

  6. #6
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    8,067
    Hi Lesley;

    I guess your mum hasn't a feeding tube and her dietitian has given her some drinks.

    There are lots of different drinks from a few different companies. Also some are smaller and more concentrated which can be hard to take for some people. Maybe contact the person and get some different drinks.

    I assume that she is finding it difficult eating normal foods but she might find that modifying the food texture etc.

    Her doctor could provide some drug to help with anxiety etc. Try to make sure she breaths out fully and try's to relax.

    If she does need from medical staff, Question, Question if they put her on oxygen for any length of time because mostly O2 is not good for Mnd people.

    I used to get panicky because I would suddenly wake up not being able to breath at all and had to rethink breathing and try to relax and not panic.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  7. #7
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Posts
    3,731
    Oh Lesley, that's hard for both of you.

    Without wanting to bombard you!! But, as a short term measure, what about mixing that shot into her favourite yoghurt, chocoolate mousse, custard etc. to make it more palatable?

    As Rachel said, maybe a feeding tube could be discussed and also breathing assistance, if that's what your mother wants.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  8. #8
    Forum Member
    Join Date
    Feb 2019
    Posts
    299
    Hi Lesley
    I suffer from panic attacks attacks As well. And they are scary. I do choke sometimes on different food and drink . People around your mum should remain calm, and help her to relax.
    I had a peg fitted 2 weeks ago, and definitely helps with feeding. Something to think about.
    Take care
    Sheila

  9. #9
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Posts
    3,731
    Hi Sheila,

    If there were a Like button on the Forum, I'd have Liked your post - lovely to read your advice.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  10. #10
    Forum Member
    Join Date
    Feb 2019
    Posts
    299
    Hi Ellie,
    Thanks Ellie, you know I have learnt from the best.
    Hugs
    Sheila

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •