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Thread: Help needed

  1. #1
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    Help needed

    Have I cause for concern? I previously posted under the heading ‘im terrified’ and you kindly replied to reassure me. My twitching has intensified, mostly on my calfs and occasionally in my arms. I took a video and showed it to my doc who has referred me to neurologist. If they see me as urgent, i shall be there within 6 weeks. If not withing ten months. My feelings of weakness in my hands and feet has improved and its like im now obsessing over the twitches. The heel of my left foot is a bit sore and today my neck is quite sore. Over the weekend, my hamstrings were tight as well as twitching a wee bit. Totally sick of this tbh.

    X

    X

  2. #2
    Forum Member MNDConnect's Avatar
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    Hi anxious

    I'm sorry to hear that this is still worrying you. Again, nothing that you have described would be considered a normal, typical presentation of motor neurone disease. Whilst people talk about "weakness" with MND, this isn't usually described as a feeling of weakness. It is an actual, physical weakness which can be measured and observed rather than a feeling.

    Twitches are not a typical initial symptom of MND. They are usually caused by anxiety. If you obsess over the twitches then they will continue.

    MND would not normally cause pain in the foot or neck.

    Have you spoken to your GP about treatment for anxiety? If your symptoms are being caused by your anxiety, this is a medical condition which your GP should be treating. If your anxiety was under control then you may see an improvement in the way that you feel.

    Best Wishes
    Rachel
    MND Connect Adviser

  3. #3
    Forum Member Kayleigh's Avatar
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    Hello Anxious,

    Understandably, you are finding it stressful and worrying, not yet having a diagnosis for your symptoms. The MNDA provide information on their website for anyone who is worried that they might have MND:-

    Link to MNDA webpage 'Have I got MND'?:-
    http://https://www.mndassociation.org/about-mnd/what-is-mnd/have-i-got-mnd/

    Best wishes,
    Kayleigh

  4. #4
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    Thanks Rachel. I have seen my GP about this and she has been fantastic. She has prescribed me anxiety medicine but obviously being in the first few days, this can take a wee while to manifest in my system and begin to lessen things. I managed to take a video of some of the twitching which she agreed would be best to refer to neurology hopefully for peace of mind.

    I have today had bloods taken to check other routine things. the problem is the contradictory information online (I know I shouldn't check) where some reasonably astute looking academic pieces have described twitches as possible initial signs.

    Am I correct in thinking that ordinarily the twitches would present after obvious atrophy and weakening of the muscle so what I am worried about is in actual fact the last thing to happen to the muscle happening 1st? For example, would someone be likely more have obvious weakening in a leg impacting on its normal function which in turn would lead to twitching?

    i must confess I do someone who passed away around my age to this horrendous disease and that could be playing a big part in my worry.

    Thank you Rachel.

  5. #5
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    Thank you Kayleigh. I am a born worrier unfortunately.

    xx

  6. #6
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    I am a born worrier as Well. But unfortunately I have Mnd. So somehow I have to deal with both things.
    I hope you get sorted and everything is ok.

  7. #7
    Forum Member MNDConnect's Avatar
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    Hi anxious

    It is really difficult when you've lost someone with MND, to not worry about symptoms. It's completely normal to do so.

    However, we've spoken quite a few times and nothing you've ever described would suggest MND.

    It's easy for me to say and I know that it is really hard to do but I think you really need to try to stop worrying about MND. Please don't let a disease that you don't have the symptoms of, take over your life.

    Do give us a ring on 0808 802 6262 if you'd like to talk through your concerns again.

    Best Wishes

    Rachel
    MND Connect Adviser

  8. #8
    Forum Member Streetwise's Avatar
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    Look up fasciculations for yourself on the Internet ,it is possible for them to be visible because of stress or a virus like flu or one of the motor neurone diseases ,I get them a lot but I suffer from panic disorder.

  9. #9
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    Hello Anxious1, I feel exactly like you and have the same symptoms, it's very frightening and the more l think about it the worst lm getting. I really hope your ok xx. I had a neurological exam which was unremarkable normal so don't know where to go from here�� l didn't have an EMG as that has to be done elsewhere...What other symptoms do you have and can l ask your age? I'm 46yr female and am worried sick...l also have terrible retching in the mornings it's like morning sickness and can sometimes sweat. I wish you all the best.

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