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Thread: New Member

  1. #1
    Forum Member
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    Nov 2019
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    1

    New Member

    Hi Everyone

    I have just been diagnosed and am feeling very confused about things at the moment . It almost feels surreal and donít know how things will develop along this journey .

  2. #2
    Forum Member Barry52's Avatar
    Join Date
    Mar 2012
    Location
    Newark on Trent
    Posts
    2,364
    Hello Martin and welcome.

    I’m not surprised that you are confused as we all have a shocked reaction and uncertainty following diagnosis. One thing you can be sure of is that you will not be isolated on your journey since our forum family will be with you to offer advice and moral support.

    Best wishes,
    Barry
    Iím going to do this even if it kills me!

  3. #3
    Forum Member
    Join Date
    Nov 2016
    Location
    Kildare in Ireland.
    Posts
    78
    Hi Martin

    Welcome to the forum. It's overwhelming at the start but I hope that between this forum and friends and family you will soon feel calmer and not so lost. It's important to get a good team of doctors and other professionals behind you as well and I hope you do. When you're ready feel free to post comments about what you feel is the most urgent problems you are facing and hopefully someone here can advise you. All the best for now.

    Mick.

  4. #4
    Forum Member Gillette's Avatar
    Join Date
    Mar 2019
    Location
    Greater Manchester
    Posts
    684
    Hi Martin,

    Sorry that you have MND. Having found us here on the forum you have access to loads of experience, knowledge, help and support. If you need help, just ask- we really do understand, especially about the fear and confusion following diagnosis.
    Dina

    Trying to keep positive, but not always managing.

  5. #5
    Forum Member nunhead_man's Avatar
    Join Date
    Jul 2017
    Location
    London
    Posts
    429
    Good morning Martin

    I am sure you do not want to be here - I am certain I do not!

    But you are in the right place to get help and support.

    Do say more about what is troubling you, and I am sure we can help you out
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

  6. #6
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Posts
    3,485
    A warm welcome to the Forum, Martin but sorry you've had to join us.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  7. #7
    Forum Member Kayleigh's Avatar
    Join Date
    Nov 2018
    Posts
    1,268
    Good afternoon Martin and a warm welcome to this forum.

    It is understandable why you are feeling confused and possibly in shock about your diagnosis.

    Please don't hesitate to ask questions and share your thoughts and feelings with us, whenever you would like to. Also the Advisers at the MNDA are available, if you would like someone to talk things through with.

    (Since my diagnosis, I have found the Advisers at the MNDA, and the lovely people who contribute to the forum, are very understanding, friendly and supportive.)

    Best wishes,
    Kayleigh

  8. #8
    Forum Member Lynne K's Avatar
    Join Date
    Nov 2017
    Posts
    930
    Hi Martin, very sorry that you've had to join us on this horrid journey but as others have said you've found the right place. We are all here to help and support one another, have the occasional laugh or offload together. When you are ready to think ahead a little it'd be sensible to read old posts about voice banking. I won't overload you now but it's something constructive to do soon. Take care, Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  9. #9
    Forum Member
    Join Date
    Feb 2019
    Posts
    243
    Hi Martin
    Welcome to this very friendly forum, I am sure you will find lots of advice and help here.
    Best wishes
    Sheila.

  10. #10
    Forum Member
    Join Date
    May 2018
    Posts
    436
    Hi Martin and a warm welcome from me. I am so sorry for your diagnosis.

    I know what you mean about it all feeling surreal. The early days are so overwhelming and I think I veered between shock and denial for a while. It does get easier however and you do learn to laugh and enjoy life again, although it probably doesn't seem like it now.

    The forum is a good place for practical and emotional support so it's good you've found us.

    Take Care,
    Love Debbie x

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