Hi Andy

I guess you do have to believe him - I certainly have no other options than to believe what they say and comments from other people who look at my hand damage for example, and say that I have a typical shape connected with arm onset.

Perhaps for your information, the weight loss thing is about one of the symptoms of motor neurone disease is an increase in metabolism, perhaps linked to the motor neurones thumping around - fasciculations take energy et cetera et cetera.

Presumably, hence his comment that if you get MND you should lose weight.

Does not work in my case because I was very active before I got MND and now less active, but have not adjusted my diet properly. So, in fact, I put on weight since I have had it rather than lost it, which certainly confuses my neurologists