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Thread: Bulbar symptoms worsening, and persistent fasciculations

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  1. #1
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    Sep 2019
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    Bulbar symptoms worsening, and persistent fasciculations

    Hi there

    I was diagnosed in August this year and have experienced a steady decline until the last 2-3 weeks when Iíve deteriorated quite rapidly. I now canít walk at all unaided (& not far with a frame/rollator), my arms are weak, especially my left arm which has very little strength (also think my left hand is starting to get weak despite both hands/fingers being so far unaffected), Iím losing my (normally very healthy!) appetite as I get so tired chewing and swallowing- and my speech has pretty much completely gone now. Iím worried that I have Bulbar deterioration and that this means my remaining time might be very limited. Would these symptoms suggest that?

    Secondly, I have - & always have had - persistent fasciculations all around my body - thereís rarely a time when at least 2 or 3 parts of my body arenít twitching. I also get frequent cramps in my legs, mostly in the night & morning when I move after sleeping. Again, this is something Iíve had for a few months now though itís becoming more frequent. Itís not overly painful so ive never sought medical advice for this , nor for the fasciculations. Do you think I should?

    Thanks
    Sarah
    Last edited by SarahWP; 16th November 2019 at 10:09.

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