I’m already with talk Liverpool which is the self reffaring service, I spoke with my service member and all she can offer me right now is online CBT therapy which I’ve completed already I’ve used the tools and techniques the online site offered but to no success, I’ve spoken to them for one to one counselling but they can’t offer that as I have done the online CBT, it’s just really frustrating to have all these symptoms I’m just worried to the point I can’t relax anymore because I’m scared, I look at my son and my partner and just cry because I think I have something serious I’m just really scared
Jordan farrell
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It's funny when I first said to my doctor I thought I had mnd, she said no. So I googled my symptoms and mnd kept coming up. When I finally saw a neurologist he said most people do use doctor Google. I saw something on you tube back a long, and this girl in America was only 19., and she had mnd.
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ccinjersey
Devastating illnesses that don’t discriminate against age, sex, race is terrifying because it can strike anyone at any time of their life. These are the illnesses that really should be on the forefront of finding a cure.
I hope an illness like MND/ALS is being aggressively attacked by researchers and scientists to finding it’s cure or very least some form of treatment, having nothing to stop it just seems so unacceptable. Time is of the essence for an illness like this, I believe the cure will come just hope sooner than later
CCxox
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Hello Jordan,
I am really sorry that anxiety about your health is affecting your life and I really hope you get some answers and help soon to put your mind at rest. If your GP is not supportive or is not referring you for help you can ask to see another one.. They certainly shouldn't be laughing or dismissing your concerns. Although we know we shouldn't I am sure most people have used Dr Google at some point , probably with inaccurate results.
I am not an expert and I'm not sure this will help you but your symptoms do not sound like MND to me. Mine started with increasing limb weakness that got gradually worse.
As others have said anxiety can cause physical symptoms so I really wish you all the best in getting the support you need so you can enjoy time with your young family.
Love Debbie x
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Originally posted by JFarrell96 View Post, I spoke to a GP in my local hospital today he’s passed my notes on to my actual GP for me to be referred to a neurologist, I spoke to MND helpline today for half a hour and the lovely lady on the phone said it’s extremely rare for someone of my age to get MND
I hope that you get a appointment with a neurologist soon. Mnd does not normally occur at such a young age especially if there's no family history of it.
I am impressed with your words and thoughtfulness.
Best wishes, TerryTB once said that "The forum is still the best source for friendship and information."
It will only remain so if new people post and keep us updated on things that work or don't work and tips.
Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.
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Hello thank you to everyone who has posted I really appreciate the everyone going out of they’re way to offer they’re advice I do fully respect and appreciate that very much! I can only hope my GP refers me to a neurologist and I can draw a line under everything, after a thorough check with family and other family members MND has never ran in my family, the only thing that does is mental health problems I have a mum who suffers bad with health anxiety a aunt with bipolar cousins with severe anxiety and depression and these cousins are my mums sisters child, so relatively quite close. My current problem is I constantly for 8 weeks first thing waking up to last minute going asleep have been searching up and reading information about MND, I spoke with a GP about MND and he told me all my symptoms wouldn’t appear in straight away it will all gradually come on, before I had a massive panic attack on the 22nd September I was playing football 4 days a week and working everyday but since the panic attack it’s triggered my health anxiety. Sorry for the long response I really do appreciate everything everyone has said, this really is a nice place to talk to people and share opinions with each other! Thank you again
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Thank you for your reply Gillette, I know I had a breakdown last night crying uncontrollably because these symptoms are scaring me and I’m genuinely scared I’ve got that bad emotionally I have had to leave staying in my house with my partner and child because I keep getting worked up and upset, I’m just very scared
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I’m so sorry you suffer with anxiety and panic attacks and you have MND as well! My heart goes out to you, I’m just worried sick thinking I might have MND I just keep looking at my son and my pregnant partner and cry all the time, I was told MND at my age is extremely rare and it’s very uncommon, I do apologise Sheila my heart goes out to you so much!!
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Hi Jordan. Just an attempt to reassure you mate. This could have been written by me. I have posted a couple of times citing similar symptoms to you. I have 3 young sons and found myself crying uncontrollably as well convincing myself I had this dreadful disease. I felt weakened and lethargy like never felt before as well as other potential symptoms that I connected toy self diagnosis. Being an anxious person like you I forced myself to stop googling and have began to feel better. I was at my docs today who now feels it was all angst based although she agreed what I was describing merited further investigation and I do have an mri next week to check generally which I understand doesn’t check for mmd.
Please realise that I was equally as anxious as you and was visualising my demise and my kids fatherless and I think you sound in a similar position.
Take care.
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Hello mate, thank you for your reply I know that’s the worst thing I’ve done is google my symptoms as I’m not medically trained I should not be self diagnosing, It’s so scary to have these physical symptoms and already seeing on google that these symptoms are also symptoms of MND is scary because I can sit there and tell myself I’m okay but something in the back of my mind still niggles away at me it’s hard to stop thinking about these things, I spoke with a GP from my GP’s practice on the phone today she’s gonna book me to have a muscle conduction test and she referred me to a neurologist for peace of mind, I’m also on 45MG mirtazapine anti depressants when I told this GP she instantly said that is to high for your age and it was a quick jump in dose I went from 15,30 to 45 in the space of 3 weeks, I feel these haven’t helped at all, I hope all goes well with your MRI mate, keep me posted on how you get on would be good to hear
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