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Thread: Jordan farrell

  1. #31
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    Hello sorry to be a pain to everyone, Iím worried sick crying uncontrollably if anyone can help and give me some advice I would much appreciate it Iím scared I fact terrified I keep thinking Iíve got MND it is very scary, i just wanted to know in the time frame of me having all these symptoms is it happening too rapidly to be MND itís been about 8/9 weeks since I had my panic attack but since then Iíve had muscle twitches difficulty swallowing I feel I get out of breath easy my thumbs seem to get stiff and feel heavy mainly in the right thumb, my legs feel strange mainly at my knees but Iím worried sick overthinking I tried speaking to my GP and he just says you havenít got MND and when I have asked for a referral (yesterday) he said no, Iím genuinely scared sorry again for being such a headache to people

  2. #32
    Forum Member Barry52's Avatar
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    Hi JFarrell,

    Please don’t concern yourself. Even if you are diagnosed with MND like many of us on this forum you will find support and advice on how to cope. Diagnosis comes as a huge shock but the most important thing is how you deal with life afterwards. I know that some people don’t want to accept the disease and they hide away but everyone on this forum is positive and all the people I meet through the branch meetings are similar.

    I do hope you find that your symptoms are not MND but you can be sure of support from this community.

    Best wishes,
    Barry
    Iím going to do this even if it kills me!

  3. #33
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    Hello hope people are doing well, Iím still very upset and worried thinking Iíve got MND Iím getting what feels like cramp feeling in my forearms my thumbs keep getting cramp and feel stiff I have muscle twitches everywhere legs back belly neck throat tongue eye lids cheeks everywhere, Iím currently obsessing over checking my muscles to see if they still feel hard and start getting myself into a lot of panic when they feel soft or donít feel as muscular, when Iím going asleep I keep jolting awake thinking Iím not breathing properly I have had some swallowing difficulties but I donít know if thatís because I keep focusing on my swallowing, Iím really scared Iíve spoken to my GP and he said itís all my anxiety but Iím really scared to the point I feel physically sick I canít rest or relax, sorry again for being a pain and a headache

  4. #34
    Forum Member Terry's Avatar
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    Hi Jordan,

    I don't think that you have Mnd mainly because of the rapid way you developed symptoms after a mental trauma. Limb onset normally shows up in one limb end first and then can appear in the other limb or in the same side other arm/leg. If it was bulbar onset you would not have the other problems first. It is also very unusual to get twitching in many places and so quickly.

    I do believe that your doctor is right in you not having Mnd but has a poor bedside manner.

    Do try to relax and maybe listen to some of the links to meditation bedtime stories.

    Love Terry

  5. #35
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    Hello terry thank you very much for your reply, Iím just very scared with me being 23 and never experienced things like this before Iím just scared it is something serious, I do thank you so much for your time in replying to me terry

  6. #36
    Forum Member Ellie's Avatar
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    Jordan, I posted this on a different thread, but it is fitting for you also. I mean it in a helpful way only, not in any way dismissive.

    What worries me about your situation is that you’re so focused on MND being the only possible reason for your symptoms, that you’ve fallen down a rabbit hole from which it’s very difficult to climb out. You can only perceive you must have MND and that perception has become your reality - that’s a very frightening place to be

    But, by continuing to seek advice only on MND, you’re neglecting your mental health, which is as important as your physical health. I’d love you to concentrate on reducing your crippling anxieties, which are consuming your life right now, rather than posting on this Forum and be able to enjoy life. If you could get continuing help for your anxieties and get control of your mental health, it would improve your life immeasurably.

    I have lived with MND/ALS for 13 years now and have learned such a lot about the disease and from the disease over time and, whilst I’m not an expert in any shape or form, I find that I often know more about MND than many a healthcare professional I’ve met.

    Genuinely, I wish you well in seeking and finding treatment.

    Love Ellie.
    Last edited by Ellie; 4th December 2019 at 11:24.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  7. #37
    Forum Member Terry's Avatar
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    Quote Originally Posted by Ellie View Post

    I know more about MND than many a healthcare professional I’ve met.

    Love Ellie.
    Chimp;

    Make sure your head will fit through the doorway. LOL

    Sorry, I just couldn't resist that.

    I reckon you know more about Mnd than some specialists that I have met as well. Live long and prosper, sweetie.

    Love The Cat

  8. #38
    Forum Member Ellie's Avatar
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    You left out the important bit of the quote !!! The after 13 years of learning bit...

    I wasn't born with this knowledge

    Love ya.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  9. #39
    Forum Member Terry's Avatar
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    Quote Originally Posted by Ellie View Post
    You left out the important bit of the quote !!! The after 13 years of learning bit...

    Love ya.
    Hi Chimp;

    Did I leave that out intentionally?

    I've had ten years of learning about Mnd, and I still know nothing.

    Love TC

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