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Thread: Russ60

  1. #11
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Hi Russ,
    I do think you should tell your GP about your stomach pain in case it has nothing to do with MND. It may be an ulcer, IBS etc. and not ‘just’ indigestion or trapped wind.

    Do you take Riluzole or any other MND-related meds?

    The nerves affected in MND don’t carry pain signals to the brain.

    Gabapentin is the drug most frequently prescribed for neuropathic (nerve) pain, but there are also alternatives.

    Best wishes,
    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  2. #12
    Forum Member
    Join Date
    Jul 2018
    Hi Russ
    You will find lots of support here. Just to mention, I've had mnd almost 8 years, and get lots of tingling, numbness, buzzing and vibration sensations, like having a mobile phone next to you! Annoying but not usually painful, thankfully.
    All the best.

  3. #13
    Forum Member
    Join Date
    Nov 2019
    Hi Olivia, Its good to know that lm not the only one who gets those symptoms. I mentioned these to my Cons and was told you can experience them lve also read replies on this forum and some do experience them also. As you said usually not painful just annoying. Hope your keeping well and had a lovely Xmas Olivia.

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