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Thread: Christmas 2019

  1. #1
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012

    Christmas 2019

    Hi everyone,

    I know this time of the year can be particularly difficult for those of us living with MND and for our families.

    But I hope we all have as good a Festive Season as possible, without incident, and can enjoy the social element of it, especially for those of us for whom getting out and about is difficult. (Even though I may escape to my bedroom for a breather if things get too loud Maybe I'm finally getting old )

    Best wishes to all and thanks for your friendship, it means a lot.

    Love Ellie
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  2. #2
    Forum Member nunhead_man's Avatar
    Join Date
    Jul 2017
    Hi Ellie and of course everyone

    For me Christmas is the time when I renew the acquaintanceship I have with my family members for the love andsupport they give me with the difficulties I have and plan my support in as far as we can for the following year.

    And in return Ellie and everyone your friendship means a lot to me to

    My best wishes to all for a peaceful Christmas season and a productive, profitable and positive 2020


    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

  3. #3
    Forum Member
    Join Date
    May 2019
    Christmas has never been my favourite time of year as an adult ( I don't enjoy the winter weather and short days and long nights etc ). But yesterday I did one of the few things I like about Christmas; - I played my favourite Crimbo song;- fairytale of New York by the Pogues
    Merry Christmas and happy new year to you all. Thank you for your support. Let's hope the new year brings significant advances into the treatment or cure of MND.

  4. #4
    Forum Member
    Join Date
    May 2018
    Hi everyone,

    Thanks for starting the thread Ellie. Christmas can be a very poignant and emotive time when life is difficult so wishing everyone on here a peaceful Christmas and new year.

    I too really appreciate the friendship and support I receive from our forum.
    Love Debbie x

  5. #5
    Forum Member JAY TEE's Avatar
    Join Date
    Apr 2014
    Halesowen, West Midlands
    Ellie. Christmas a good time for me. It’s 5yrs since I last cooked the family meal for 16 of us. Lookily one of my sons doing the meal for us and my 10yr old granddaughter will do my Peg feed. Hope you all have good Christmas presents. My favourite present is being taken to see new Star Wars film. Best wishes John

  6. #6
    Forum Member Lynne K's Avatar
    Join Date
    Nov 2017
    Hi everyone, this year the Christmas lunch is at ours. I'll help as much as I can whilst Steve does the cooking. My youngest daughter and her 3 children are coming. It's the youngests 4th birthday Christmas day. That was a Christmas to remember. I cooked the meal but had to leave it to take my daughter to the hospital. I was her birth partner that time. It was too late to eat when it was all over. We all had Christmas the following day, Boxing Day. They do Jo Jo's (Joseph) birthday in the morning and Christmas begins after 12. This year it'll be when they get to ours.

    I hope that you all have a lovely Christmas without any major problems. I'm looking forward to January when I ought be starting the trial.

    Love to all, Lynne
    Last edited by Lynne K; 18th December 2019 at 19:59.
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  7. #7
    Merry Christmas Forum Folks

    Thank you all for the tremendous support you have given me through the years. Although my dearest best friend is no longer here your advice, knowledge and wisdom was invaluable to me.

    Wishing you all a wonderful Christmas filled with much Love now, and in the coming new year, and also praying the new year will bring with it the cure.


  8. #8
    Forum Member
    Join Date
    Feb 2019
    I have always loved Christmas, but this year I have definitely lost my mojo. But I will enjoy it the best I can. I want to wish you all a happy Christmas and peaceful new year, and a big thanks for being here for me.
    Love Sheila x

  9. #9
    Forum Member Barry52's Avatar
    Join Date
    Mar 2012
    Newark on Trent
    Wishing everyone a peaceful and joyous Christmas. Whilst I am slow and unsteady I will still rise (or fall if I have a tipple or two) to the challenge I have undertaken for 30 years, by cooking our Christmas meal. My wife does a marvellous job of table decorating and she serves because I am adept at throwing it on the floor.

    I do hope that you all have family or friends around you and that we can look forward to better prospects ahead in the fight to find a treatment for this disease.

    Iím going to do this even if it kills me!

  10. #10
    Forum Member
    Join Date
    Jul 2019
    Wishing you all a happy Christmas and as healthy as possible, let's hope 2020 brings good new for all.


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