Diagnosed September 2018, some respiratory failure but maintained since diagnosis by exercise, mainly cycling on an electric bike and a spinning bike at home. Main everyday problem is loss of strength in upper body, mainly wrists and hands. Great believer in positive thinking and eating well. Mix a nutritious smoothie each day, been taking Curcumin tablets for about 2 months and just started drinking Matcha tea. I visit a Bowen Therapist monthly and have recently visited a Herbalist who has mixed a "Potion" to be taken 3 times a day. In a nutshell, I'll try anything to maintain a reasonable life for a 76 year old!
-
-
Sorry to have to welcome you on board Bob, but I do so warmly.
Keep going with whatever works for you, mentally and physically - the only caveat is not to over stress your muscles during exercise.
Is the 'Biker' reference relating to the exercise bike or a motorbike
Love Ellie.Diagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
-
Welcome Biker Bob,
From what you say you appear to have a positive approach which will help you with the challenge this disease brings. Exercise is important but as Ellie says, be aware of your limitations. You mentioned curcumin tablets. I take a water soluble form which is better absorbed in the bloodstream.
Best wishes,
BarryI’m going to do this even if it kills me!Comment
-
Hi Bob, welcome to the forums that nobody really wanted to join. But we've all benefited from them in multiple ways. You do sound like a very positive and active person.
What benefit do you get from curcumin? Or, what benefit are you expecting to get?
Take care, LynneALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
-
Hi Lynne,
I hope you are having a good day. In answer to your question to Bob I attach a link which shows the benefits of various supplements, including curcumin. The list is published by ALStuttu.org
The few supplements I take are not to treat the symptoms of MND but to improve my weakened immune system. The anti inflammatory benefits of curcumin means the injuries I sustain from my frequent falls heal quickly. I am not advocating that anyone should adopt a supplement regime but I believe it works for me.
Best wishes,
Barry xI’m going to do this even if it kills me!Comment
-
Thanks for taking the time to explain Barry, Lynne.ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
-
Welcome Bob
As said above sorry to see you in a place where I'm sure you would rather not be.
Could you say what a Bowen therapist does?Warmly
Andy
Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"Comment
Comment