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Thread: Hospital withdraw treatment

  1. #11
    Forum Moderator MNDConnect's Avatar
    Join Date
    Mar 2016
    Hi Juliette

    Thank you for letting us know. I am pleased to hear that the Consultant has decided to prescribe another antibiotic.

    If you have any further concerns then please don't hesitate to contact us again on 0808 802 6262.

    Best Wishes


  2. #12
    Forum Member
    Join Date
    Apr 2018
    Hello you lovelies

    In answer to your question Ellie mum experienced no problem in receiving CHC funding (with no upper limit). The problem was with the CHC allowing an Agency to provide the care required at home. What should have been a two month hospital admission last year turned into ten months thanks to the CHC and Health Case Management Team. Mum was medically fit for discharge but it took eight months of fighting against a Nursing Home admission. Apparently the Nursing Hone placements are purchased ‘on block’ making them a darn sight cheaper!.

  3. #13
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Oh my days Juliette, that is utterly appalling. Your mum isn't a commodity but a real person with real feelings and a family with the same.

    The only thing I can say is a feeble Good Luck in getting your mum home.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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