saying hello. Bit lost.

[Boden1986]

Hi Benaldo, my dad was diagnosed early January.
I struggle still with what to do etc.
With dad most appointments just fell in to place as the consultant and mnd nurse will refer to things such as the SALT team ( speech and language therapy). Mnd association are always great to connect with. Loros hospice have been amazing with dad too so they are a good contact to have. Try not to get over whelmed to easy though it's hard to not get swept away with it all.
I really hope you are all ok xxx

[benaldo]

Hi Benaldo, my dad was diagnosed early January.
I struggle still with what to do etc.
With dad most appointments just fell in to place as the consultant and mnd nurse will refer to things such as the SALT team ( speech and language therapy). Mnd association are always great to connect with. Loros hospice have been amazing with dad too so they are a good contact to have. Try not to get over whelmed to easy though it's hard to not get swept away with it all.
I really hope you are all ok xxx

you're really kind, thank you. My dad's been told (by specialist) to maybe stay away from local MND association and meetups for now, because he'll see people in a condition that may unsettle him, and that he should wait. I think he's getting to grips with what needs to be done, but not fully. He's done his LPA. I think the coronavirus shut down will focus his mind!

[Boden1986]

Oh yeah of course, sorry I forgot there for a second about the dreaded invisible enemy. It is tough as the child, I understand well how you must be feeling. Please reach out if you want to talk.

[benaldo]

Oh yeah of course, sorry I forgot there for a second about the dreaded invisible enemy. It is tough as the child, I understand well how you must be feeling. Please reach out if you want to talk.

thank you so much.
What do you mean the dreaded invisible enemy? Coronavirus?!

[Boden1986]

Yes coronavirus. X