It has come to my attention through my local branch that MNDA has advised the following.


Dear Colleagues

We are aware that the spread of coronavirus in the UK may be causing concern. Our priority, as always, is to ensure that everyone affected by MND has the most up to date advice and the support they need and that their health is not put at risk by our actions.

With that in mind, if you are living with MND or you are caring for someone with MND please discuss any specific concerns you have with your health and social care team. They will be able to give you advice and information which takes into account your specific circumstances.

You will find links on our dedicated website page to the organisations providing the most up to date information.

A number of branches and groups have already suspended their get togethers, meetings and support groups to reduce the risk of spreading the virus to people with MND or those in contact with them. Our teams have discussed the ongoing situation with neurology consultants and MND specialists in our care networks and, on their advice, we are recommending that all branch and group meetings where people living with MND and their carers are present taking place before the end of April are suspended. Of course, we will continue to monitor and review the situation and update you if advice changes.

Our advice is also that AVs and other support volunteers should where possible try to avoid face-to-face meetings with people affected by MND for the time being to minimise the risk to those most vulnerable to this virus.

We realise that branch and group get togethers and AV visits are a valuable source of information, social interaction and support. Do please consider alternative ways of keeping in touch with each other, perhaps by phone calls, emails, Facetime, Skype, social media etc as we want our community to stay connected and in touch.

If you need further support our helpline MND Connect 0808 802 6262 - is available Monday to Friday between 9am and 5pm and then 7pm to 10.30pm.

This is a fast changing situation, and we will review the situation and government advice regularly and keep in touch with you throughout.