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Thread: Take Me Home Please

  1. #1
    Forum Member
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    Apr 2018
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    Last edited by Juliette; 12th March 2020 at 21:00.

  2. #2
    Forum Member
    Join Date
    Dec 2010
    Location
    Salford
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    120
    hi juliette,

    contact ur MP as urgent. steve bell, care director mnda may help.

    hospitals r no place 4 mnd patients. u r mum's best hope.

    my chc was equally rude n brutal. they gave me till 2013 but they gave up on me dying in salford hosp in jul 2014 n moved me home.

    be rude n brutal back, nothing to lose.
    Copyright Graham

  3. #3
    Forum Member nunhead_man's Avatar
    Join Date
    Jul 2017
    Location
    London
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    444
    Hi Juliette

    I wonder if the PALS service is now a broken reed?

    https://www.nhs.uk/common-health-que...aison-service/

    When I had to deal with my mum being discharged after hip repair with no care 10 years ago they got the district nurses et cetera shifted remarkably quickly.

    But of course there may not be able to do very much in your circumstances?
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

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