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Thread: Coronavirus Information

  1. #31
    Forum Member Barry52's Avatar
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    Hi Terry,

    Great news that you are back home with the correct equipment. I hope you donít have to use it but it must be comforting to know itís there.

    Graham,
    You must be made of strong stuff and Iím happy that you pulled through. I believe we are all going to have many challenges ahead and I am pleased we have this forum to keep in touch as the prospect of isolation is not one I relish.

    Love,
    Barry
    Iím going to do this even if it kills me!

  2. #32
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    Hi barry,

    the type of mnd you have is crucial. I have upper neurone disease or brain-rot, which means the lower motor neurones can still do their stuff. my sneezes are legendary and my laptop often goes flying along with the snot. sorry girls but that is mnd.

    20 odd years of squash has set me in good stead. people said I breathed through my arse playing squash which has helped now.

    yes, it won't be easy and the dire state of the nhs doesn't help.

    I suggest getting in antibiotics beforehand and take as soon as first cough and temperature.

    love
    Copyright Graham

  3. #33
    Forum Member Terry's Avatar
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    Hi Graham,

    Sorry to hear that you have been so unwell. Like you I can coat things ten feet away when I sneeze or cough.

    Pleased I have the nippy.

  4. #34
    Forum Member nunhead_man's Avatar
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    Good afternoon all

    Sorry to hear you not been well Graham but glad you've come through it if indeed you have.

    And Terry glad to see you're keeping well and back home

    My added wrinkle is of course we are trying to move house at the moment - all we need is for us to be infected at the point where we complete the purchase or indeed by that time, perhaps eight weeks hence, if we have a transport lockdown.

    A friend and colleague who I was talking to this about said she was hoping that the government will push a big red pause button on everything but I reckon it's going to be a lot more granular than that with income opportunities for some and some incurring quite substantial costs
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

  5. #35
    Forum Member Lynne K's Avatar
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    CC, there is a free flu jab for most people in UK. Essential health workers, vulnerable people, the over 60s all get invited. Others can request it from GP and get free or pay at a pharmacy. There is nothing like this for Covid19 so it is a different ball game altogether and an element of choice or ignorance where people donít get a flu jab every year and go on to suffer then die of it. Me and my husband have been getting free flu jabs for about 5 years. Now we have been self isolating and will continue this until the risk has passed . We are both vulnerable, my MND and his age.
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  6. #36
    Forum Member Lynne K's Avatar
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    I’m glad to hear that you pulled through Graham. The Government is talking about sending everybody a home testing kit to see who has already had Covid19 so that the scientists who are analysing this pandemic can get a clear picture of where the virus has been. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  7. #37
    Forum Member nunhead_man's Avatar
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    Hi Lynne,

    Sending everyone a testing kit?

    My wife runs the bowel cancer screening programme for one of the central London hospitals covering most of south London and she tells war stories about the challenges they have because everybody over 55 gets called in for a bowel cancer check of one sort or another. And the take up is quite poor.

    However possibly this is sufficiently high profile to get a good response rate if indeed this is what is planned?
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

  8. #38
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    hi lynne,

    I hope you are keeping well and thanks for your kind words. it is common sense to test for people that have natural immunity, but as most ministers are focusing on appearing on love island, we can dream on. I do feel that I have been totally failed by government but this is nothing new. the massive benefit is my whole care team are through it and my colleague returned to work today feeling much better.

    hi terry,

    hope you and the wife are feeling stronger today.

    love
    Copyright Graham

  9. #39
    Forum Member Lynne K's Avatar
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    Andy, we both get the bowel cancer screening letter regularly. The Prime Minister and a medical specialist who was speaking with him yesterday (it was on the BBC News). They both talked about their idea to test everybody’s so that they can see how this Covid19 virus is behaved. That will help them in several ways, some research based and also practical. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  10. #40
    Forum Member Terry's Avatar
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    Hi Lynne;

    Hope your husband is being careful now.

    My wife has.

    Love Terry

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