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Thread: Coronavirus Information

  1. #1
    Forum Administrator Admin_MND's Avatar
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    Post Coronavirus Information

    We are aware that the situation surrounding the spread of coronavirus may be causing people affected by motor neurone disease (MND) concern.

    Please take some time to review our webpage which shares useful information and links about the current situation https://www.mndassociation.org/mnd-and-coronavirus/.

    We are regularly reviewing this in line with the advice given by the NHS and the Government and will be updating our webpage as and when new information becomes available

    If you are living with MND or you are caring for someone with MND please discuss any specific concerns you have with your health and social care team. They will be able to give you advice and information which takes into account your specific circumstances.

  2. #2
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    It is unrealistic to expect to not get coronavirus for those of us bedbound and reliant on others to visit and care.

    the choice is; -
    1. get coronavirus and take your chances.
    2. die of starvation, as all your carers go into isolation for 2 weeks or longer.

    government, as usual, are in PR mode and not facing up to the REALITIES.
    Copyright Graham

  3. #3
    Forum Member Terry's Avatar
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    I'm worried to about carers not being honest because many are on zero hours contracts.

    You are extra at more of a risk than many of us at catching it.

    My breathing is not quite so good now so quite concerned.

    Don't like the way that the government is dealing with it, by not testing people we have little idea how bad it is.

    Love Terry

  4. #4
    Forum Member nunhead_man's Avatar
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    Good morning Terry and Graham

    I hope you stay well - as you say this carers issue needs fixing

    Here are some up-to-date numbers - the level of testing in the United States is a particular standout as is the specific detail of what is a Covid 19 symptom as we presently know it


    https://www.worldometers.info/corona...navirus-cases/
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

  5. #5
    ccinjersey
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    I think this pandemic is really more a panpanic. The news and social media are spinning it so far out of control people are losing prospective here over it.

    55,000 people have died from the flu from October 2019 to March of 2020. Why doesn't the news report these statistics? . The news really needs to stop causing this mass hysteria because it effecting the economy and soon people will start losing their jobs over it.

    There is no bottled water, toilet paper or boxes of pasta or rice to found in our stores. Schools are closed as well as most sporting events here.

    The N95 surgical mask is the best to use for those that have compromised immune systems the regular surgical mask won't help much.
    Carers coming in from the outside should wear the N95 mask its your best protection and of course wash hands.

    There's no need to panic this to shall pass

    CCxox

  6. #6
    Forum Member Terry's Avatar
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    Hi Cc;

    What worries us so much is the speed in which it travels along with it attacking most of us poor respiratory function.

    It's probably little worry to normal people and you are probably right in saying Flu kills more people.

    I don't think Flu is so easily spread and there are vaccines that lessen the risk.

    Love Terry

  7. #7
    ccinjersey
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    Hi Terry

    No worries, no panic. The media is doing this, they scare us out of our wits into a state of panic and that is exactly what is going on here. It has become all consuming for people, in my opinion people are losing prospective because its constantly being shoved down our throats by the media.

    Yes people with compromised immune systems have a much greater concern, but worry and panic won't help it only adds additional stress even to healthy people.

    Warm weather will be here soon and hopefully this virus will be gone

    Here's so info from a health site.

    xox


    Similarities: COVID-19 and the Flu

    Symptoms

    • Both cause fever, cough, body aches, fatigue; sometimes vomiting and diarrhea.
    • Can be mild or severe, even fatal in rare cases.
    • Can result in pneumonia.

    Transmission

    • Both can be spread from person to person through droplets in the air from an infected person coughing, sneezing or talking.
    • A possible difference: COVID-19 might be spread through the airborne route
    • Flu can be spread by an infected person for several days before their symptoms appear, and COVID-19 is believed to be spread in the
    same manner, but we don’t yet know for sure.

    Treatment

    • Neither virus is treatable with antibiotics, which only work on bacterial infections.
    • Both may be treated by addressing symptoms, such as reducing fever. Severe cases may require hospitalization and support such as
    mechanical ventilation.

    Prevention

    Both may be prevented by frequent, thorough hand washing, coughing into the crook of your elbow, staying home when sick and limiting contact with people who are infected.

  8. #8
    Forum Member Ellie's Avatar
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    Your posts beggar belief, CC.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  9. #9
    Forum Member Terry's Avatar
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    I agree Ellie,

    Here we are sitting ducks, so vulnerable.

    Don't think that there could be much of a worse thing for us with carers.

    Nobody is giving the right numbers because they are no longer testing all reported cases.

    There is little life risk to normal people which makes it even worse for us, look at Lynne case.

    Love Terry

  10. #10
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    I agree too,

    I am sure we all feel even more vulnerable than usual. My husband and I ( i sound like the queen! ) have agreed to stay at home with no visitors. I know it will drive him mad but we are lucky because I dont have outside carers so its doable.

    Our youngest has moved out temporarily to protect me and is leaving our shopping outside. He goes to work on a busy train and he feels he is at risk of getting it and passing it to me.

    It's all scary isnt it as life is hard enough living with MND.

    I hope, with all my heart , that we all stay safe.

    Love Debbie x

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