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Thread: Nippy 4

  1. #1
    Forum Member Terry's Avatar
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    Nippy 4

    I was lucky enough to bring home a Nippy 4 Tuesday after one night of trying it. I have used it for a couple of hours during the day time and used it for eight hours last night. It has caused me sore areas either side of my nose that are sore and feel brused. I know that I should have made more effort to get a second different mask type but I didn't want to push my luck.

    Like always I'm over the weekend.

    Any advice?

    Using the mask didn't seem to give me more energy but it made me more relaxed the next day and I didn't cough.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

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  2. #2
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    hi terry,

    you should find help here

    http://www.nippyventilator.com/support/

    love
    Copyright Graham

  3. #3
    Forum Member Ellie's Avatar
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    Hi TC,

    Is it the mask causing the problems rather than the Nippy - as in, does the air pressure feel OK?

    If it is, what mask is it - does it look like this?

    JOYCE_SilkGel_Full_Face_Lowenstein.jpg

    Love Ellie.
    Last edited by Ellie; 22nd March 2020 at 11:51.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  4. #4
    Forum Member Terry's Avatar
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    Hi Graham and Ellie;

    Thanks for the link.

    I think that the Pressures seem ok' my nose is quite wide so it's the sides that are feeling bruised and not the top.

    this is the mask i have, Airfit F10,

    https://www.sleep-tight.co.uk/resmed...ce-mask-system

    I think the pressure is set ti 14 6

    Love terry

  5. #5
    Forum Member Ellie's Avatar
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    That's a nice mask Terry, generally quite comfortable.

    It could be the wrong size but you were probably measured for it in Papworth - what size is yours? The mask rim shouldn't sit on the side of your nose. (There is a sizing template on their site)

    Or maybe the straps are just a tad tight?

    Do contact them if it's still causing soreness and ask them to post you a different size or a different mask brand to try. If you can wear nasal masks, that should get over the big honker you have but not everyone can wear nasal masks.

    As a short-term measure you could try putting plasters on your skin for padding - my nurse gave me Duoderm Extra Thin plasters which didn't interfere with the air seal. Creams, including barrier creams, can damage the rubber so are not recommended.

    You'll get it sorted!

    Take care.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  6. #6
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    hi terry,

    further to ellie's good advice, the mask may need subtly bending to relieve the pressure points. guessing that cotton wool may relieve pressure.

    love
    Copyright Graham

  7. #7
    Forum Member Terry's Avatar
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    My over night at hospital was set at 12 3 so maybe in order to seal 14 6 I tightened it to much. Have since cut my wiskers off but doubt I'll be wearing it tonight.

    The size is Large.

    Shame, Terry

  8. #8
    Forum Member Ellie's Avatar
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    Yes I heard smooth faces get better seals. Sorry the cat has lost his whiskers

    The straps can be snug, rather than tight, but they shouldn't hurt.

    Leave it tonight, give your face a rest! And you feel 14 6 is better for you than 12 3 - not too strong, forced or distracting??

    I'm glad you got NIV anyway - be prepared

    Hope you get a good sleep tonight.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  9. #9
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    Hi Terry

    My Mam has the same issue. She has tried a few masks but they donít seem to work so always reverts back to the original one, however it really hurts her nose. She now has a boomerang strip for her nose and it seems to be working. Hope you get sorted soon x

  10. #10
    Forum Member nunhead_man's Avatar
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    Hi Terry

    I had the same problem when I started my using my nippy and in fact where it got me was across the bridge of my nose.

    My breathing lot provided me with a slightly different mask that fits under my nose - see

    https://www.resmed.com/en-us/sleep-a...ks/airfit-f30/
    Last edited by nunhead_man; 24th March 2020 at 10:31.
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

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