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Thread: Hello

  1. #1
    Forum Member
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    Hello

    Hi I am newly diagnosed..am self isolating at home. I was a teaching assistant for special needs children..I wont be able to go back to my job as speech affected and it was becoming difficult...also have a weak arm now.. I hope soon when restrictions lesson that I can get to try some gentle swimming again and possibly some easier gym stuff as I'll be a lady of leisure!.

  2. #2
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    Hello Elvisfan,
    I was a support worker for people with learning disabilities, my voice changed to the point it would unsettle them, I had to stop working, I totally understand

  3. #3
    Forum Member Ellie's Avatar
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    Oct 2012
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    Hi Elvisfan.

    Welcome to the Forum but sorry you've had to join us.

    Have you banked your voice for future use or spoken to your Speech & Language Therapist (SLT) about it?

    Stay safe.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  4. #4
    Forum Member Peanut's Avatar
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    Hello Elvisfan,

    welcome fellow newbie! I hope you'll be able to go back to swimming again soon, and to explore the lady-of-leisure lifestyle.

    cocktail.png

    All the best,
    Peanut
    Attached Images Attached Images

  5. #5
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    Apr 2020
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    Hi ellie...yes we have banked my voice already.we got onto that straight away..

  6. #6
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    Hi Peanut..hope so thank you keep safe

  7. #7
    Forum Member Lynne K's Avatar
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    Nov 2017
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    Hi Elvisfan, what a cool moniker How much of an Elvis fan are you? Have you traveled?

    Welcome to our forums and sorry that you’ve had to join us on this horrid MND journey. But you sound very positive and that’s a very good way to be (seeing as being miserable doesn’t change anything and wastes our precious time).

    I hope that you can be that lady of leisure later in the year. Take care, Lynne x
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  8. #8
    Forum Member
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    May 2018
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    Hi Elvisfan and a warm welcome to the forum from me.

    I am so sorry for your diagnosis but I'm glad you've found the forum as it's a good place for friendship and support. I was a primary school teacher when I was diagnosed and I took early retirement because , like you, i didn't feel i could do my job properly with mobility problems even though the school would have been happy to help. I do miss being with the children but not the paperwork!

    You sound like you have a really upbeat attitude so I really hope you enjoy being a lady of leisure. It's frustrating at the moment when we can't see people or get out to make the most of everyday. I am enjoy reading and not feeling guilty about downloading expensive books.

    Take Care,
    Love Debbie x

  9. #9
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    Welcome Elvisfan. A positive mental attitude seems to help in coping with the many aspects of MND but please don’t hesitate to ask questions - there’s a lot of knowledge and experience on this forum.

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