Hello my name is Sarah and I am in a terrible state.
Last week I noticed I had a tingly sensation on the side of my tongue. When I looked I could see it twitch in the same spot. I am now terrified that I have bulbar onset mnd. I have seen my doctor who is unconcerned and said it's anxiety. I do suffer from health anxiety and I have had twitches all over my body before, which I have previously worried about, but managed to accept it was ok. That was a few years ago. I have been all over the internet looking up tongue twitching, I emailed and spoke to the helpline on here and everyone is saying it's highly unlikely to be what I am fearing and that I would have other symptoms. Since then I have started checking my tongue, looking for signs of atrophy, thinking about swallowing and my speech. Noone has said my speech is off, but I have read on here people who say they had a hoarse voice and mine feels a bit hoarse. I am 51 and so feel that my age puts me at risk too.
I suppose I want someone to tell me that I can believe this isn't bulbar onset mnd and that my doctor is probably correct when she says it's part of my anxiety and the twitch is no different to an eye twitch? My mum was very recently diagnosed with lung cancer which I was very upset about, but thought I had been dealing with it ok.
If anyone can offer me any words of advice I would really appreciate it.
Thank you
Sarah
Last week I noticed I had a tingly sensation on the side of my tongue. When I looked I could see it twitch in the same spot. I am now terrified that I have bulbar onset mnd. I have seen my doctor who is unconcerned and said it's anxiety. I do suffer from health anxiety and I have had twitches all over my body before, which I have previously worried about, but managed to accept it was ok. That was a few years ago. I have been all over the internet looking up tongue twitching, I emailed and spoke to the helpline on here and everyone is saying it's highly unlikely to be what I am fearing and that I would have other symptoms. Since then I have started checking my tongue, looking for signs of atrophy, thinking about swallowing and my speech. Noone has said my speech is off, but I have read on here people who say they had a hoarse voice and mine feels a bit hoarse. I am 51 and so feel that my age puts me at risk too.
I suppose I want someone to tell me that I can believe this isn't bulbar onset mnd and that my doctor is probably correct when she says it's part of my anxiety and the twitch is no different to an eye twitch? My mum was very recently diagnosed with lung cancer which I was very upset about, but thought I had been dealing with it ok.
If anyone can offer me any words of advice I would really appreciate it.
Thank you
Sarah
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