Hi Sue

I know exactly how you feel and it is a tricky one. When I was first diagnosed the community team threw everything at us and I think that they do that is because everyone takes a different path with this illness. I found it all quite frightening and hated my hospital bed. We dressed it up and it wasn't until we went away for a few nights and had a double bed that I realised that I really missed sharing a bed with my husband. So the bed went back and eight years later I am still in our normal bed because I am fortunate and my illness has progressed slowly.

What I am trying to say is there are no wrongs or rights. Do what makes you happiest and that makes your lives easier but keep an open mind

Take care and stay safe
Sarah xx