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Thread: Bed Advice

  1. #11
    Forum Member
    Join Date
    May 2018
    Hi Sue

    I know exactly how you feel and it is a tricky one. When I was first diagnosed the community team threw everything at us and I think that they do that is because everyone takes a different path with this illness. I found it all quite frightening and hated my hospital bed. We dressed it up and it wasn't until we went away for a few nights and had a double bed that I realised that I really missed sharing a bed with my husband. So the bed went back and eight years later I am still in our normal bed because I am fortunate and my illness has progressed slowly.

    What I am trying to say is there are no wrongs or rights. Do what makes you happiest and that makes your lives easier but keep an open mind

    Take care and stay safe
    Sarah xx

  2. #12
    Forum Member
    Join Date
    Mar 2019
    Iver, Bucks
    Hello Sarah,

    Lovely to hear from you.

    Yes thats why the decisions are so difficult as you don't know how things will progress. Im pleased to hear your symptoms are very slow and you still manage to share a "normal" bed.

    with best wishes
    take care
    Sue x

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