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Thread: Hello Everyone

  1. #1
    Forum Member
    Join Date
    Apr 2020
    Location
    Glasgow
    Posts
    16

    Hello Everyone

    Hello from Scotland (I'm not sure entirely where this forum covers),

    My boyfriend (aged 32) was diagnosed in January this year, after 2 years of testing (or waiting for appointments I should say, until someone took things seriously). Left arm completely gone now and right arm 20% functioning, as well as balancing troubles and a few falls around the house already.

    I've been looking at this forum for quite some time and not been brave enough to post up till now. He's quite a private person and he'll admit more of an introvert than myself. I've been a complete mess to say the least and reckon I could write a book or a movie on the last two years alone never mind what's ahead of us. When I think about things for too long i just break down. Never had any requirement for mental health assistance previously but first session booked in this week as don't want him to see me tearful constantly and a method to offload I guess. He seems to have come to terms with it (Besides having not told his family yet. A huge task, I know, but I know that'll be the extra support we need. However may have to wait an extra few weeks now with Covid), but I can notice moments of sadness for sure.

    He stopped working at the end of last year and I've been working full time until getting furloughed 6 weeks ago and given the diagnosis, has probably been a blessing in disguise to be around as things slowly progress and assistance is needed more. Who knows what big decisions I'll need to make when they lift measures further.

    Anyways, I just wanted to say hello to all and I'm sure I'll have questions along the way, as we're going to have to learn as we go, like most.

    'Tess'

    Xx

  2. #2
    Forum Member
    Join Date
    Jul 2019
    Location
    Bournemouth
    Posts
    98
    Hello Tess,
    Iím 37, Iíve had MND since July last year, this forum and the people in it have been my greatest support, your not alone, if anyone doesnít have the answer, theyíll point you in the right direction

  3. #3
    Forum Member
    Join Date
    Apr 2020
    Location
    Glasgow
    Posts
    16
    Hi Hayls,

    So bazaar that this post has appeared. I knew I wasn't going crazy when I thought I posted it the other day, so I re wrote one also. Must sound like a repetitive robot now haha.

    Thanks for your reply. I hope joining a network will help answer some questions.

    Tess
    X

  4. #4
    Forum Member
    Join Date
    Jan 2011
    Location
    Northamptonshire
    Posts
    227
    Welcome Tess. Please don’t ever feel there are questions you can’t ask. It’s a lot to take in but try to take a step at a time otherwise you will feel overwhelmed.

  5. #5
    Forum Member
    Join Date
    Apr 2020
    Location
    Glasgow
    Posts
    16
    Thankyou Miranda!

    Tess
    x

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