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Thread: Day One - now what?

  1. #1
    Forum Member
    Join Date
    May 2020
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    Upwood, Huntingdon
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    16

    Day One - now what?

    Hi Everyone

    I'm so glad to have joined this forum a day after getting diagnosed at 55 with this disease. This is the first full day and I've been reading lots and getting support from friends and family. Does anyone have any advise on what to do and not do in this very early stage of a difficult journey. Thanks in advance

  2. #2
    Forum Member
    Join Date
    Dec 2010
    Location
    Salford
    Posts
    117
    Very important to know what MND you have. Get a gene test.

    This informs you how much time you have to get a care package in place but the safe assumption is to act fast.
    Copyright Graham

  3. #3
    Forum Member
    Join Date
    May 2020
    Location
    Upwood, Huntingdon
    Posts
    16
    Quote Originally Posted by Graham View Post
    Very important to know what MND you have. Get a gene test.

    This informs you how much time you have to get a care package in place but the safe assumption is to act fast.
    Thanks Graham

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