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Thread: Support MND carers by signing our open letter

  1. #1
    Forum Administrator Admin_MND's Avatar
    Join Date
    Oct 2015

    Support MND carers by signing our open letter

    This morning, we have launched our new campaign #supportMNDcarers and we would really appreciate your support in signing our open letter.

    We are extremely concerned that unpaid MND carers are under immense pressure to provide more care with no breaks and very little support. Thatís why we are calling on the UK Government, the Welsh Government, and the Northern Ireland Executive to act now to relieve some of the immediate pressures being faced by our carers. We want to see improved access to testing and PPE, increase in Carers Allowance, and clear guidance that helps protect unpaid carers and those they care for as lockdown restrictions begin to be lifted.

    Please join our urgent call to #supportMNDcarers through the COVID-19 crisis by signing our open letter and share your experiences.

    Find out more here

    Thank you for your support.

  2. #2
    Yes I agree. My husband's wonderful carer hasn't been for three months now. Both her and hubby agreed the risks were too great as she also works in a hospital.
    So it's all down to me day and night. My business is currently closed and so we have no income.
    Hubby gets CHC so I phoned and suggested they may like to pay me as the carer. I've had no response so I think the answer is no. You can only ask.

  3. #3
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Gosh MMW, how awful for you - I'm sorry for your woes.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  4. #4
    Forum Member matthew55's Avatar
    Join Date
    May 2020
    Near Manchester
    Signed with pleasure

  5. #5
    Forum Member
    Join Date
    May 2018
    I've signed it.

    So sorry for your problems music man 's wife. It sounds very difficult.

    Love Debbie x

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