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Thread: Opinions please

  1. #1
    Forum Member matthew55's Avatar
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    Opinions please

    I am seriously considering having my upper incisors removed before I go completely mad. I am missing one of my front teeth already so is it a good idea?

  2. #2
    Forum Member Ellie's Avatar
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    MND Connect are off until Tuesday, Matthew.

    May I ask in the meantime - in what way are they driving you mad(I hope you're not in pain...) and are you talking about having all of the other 3 upper incisors removed? Has your dentist suggested anything?

    Love Ellie.
    Last edited by Ellie; 23rd May 2020 at 15:13.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #3
    Forum Member matthew55's Avatar
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    Hi Ellie, I am drawing blood most days from my lips and tongue as my jaw has moved. I haven't been able to find a dentist at this present time but what I want is the canine not incisors removed, my bad 😊

  4. #4
    Forum Member Ellie's Avatar
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    Oh I can empathise!

    My jaw hangs too but my upper teeth overhang my lower teeth, so I only chomp my cheeks when I sneeze I wear a light gumshield in bed, which my dentist made, and I guess I could wear it for most of the day too, if needed (obvs not if eating and, as I can't speak, that wouldn't be a consideration for me)
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  5. #5
    Forum Member matthew55's Avatar
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    Just a thought but I live with MND 24/7 and nights and weekends are probably the hardest times to get through, I don't feel like calling the Samaritans just yet but at least I know I can call them at anytime. I'm not having a go I'm just saying.
    Love Matthew

  6. #6
    Forum Moderator MNDConnect's Avatar
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    Hi Matthew

    I'm sorry to hear about the problems that you are having. It must be very unpleasant and uncomfortable for you. We would suggest speaking to a dentist to discuss having teeth removed.

    I am sorry that we weren't available over the weekend. As a non-emergency service, we aren't available at weekends. We do, however have an evening helpline which is run by experienced volunteers. They are available between 7pm-10:30pm Monday-Friday on 0808 802 6262.

    Best Wishes

    Rachel
    MND Connect Adviser

  7. #7
    Forum Member matthew55's Avatar
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    Thanks Rachel, I was having a bad day my bad. Sorry.

  8. #8
    Forum Moderator MNDConnect's Avatar
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    Quote Originally Posted by matthew55 View Post
    Thanks Rachel, I was having a bad day my bad. Sorry.
    Please don't apologise. It's completely understandable that you would want someone to contact. Please be assured that we will always try to respond to you as soon as possible

    Best Wishes

    Rachel
    MND Connect Adviser

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