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Directory Topics Posts Last Post
Welcome
Forum Announcements & Help
Having trouble with using the forum? Then post in here and Admins will answer any questions you may have.
Topics: 49 Posts: 538
Last Post: Website update
49 538
Graham
by Graham
MND Association News
Developments and news updates on the work of the MND Association.
Topics: 25 Posts: 181
25 181
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 354 Posts: 5,892
Last Post: Hi there
354 5,892
Mayflower
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 1,114 Posts: 16,696
1,114 16,696
Sub-Forums:
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 24 Posts: 246
24 246
bridoc2904
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 238 Posts: 2,829
Last Post: Hospice visit.
238 2,829
MNDConnect
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 120 Posts: 2,289
Last Post: Options for Chris.
120 2,289
Mary C
by Mary C
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 163 Posts: 2,166
163 2,166
Sub-Forums:
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 33 Posts: 324
33 324
matthew55
Sub-Forums:
Local support (6/68)
Daily living with MND
Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 108 Posts: 1,462
108 1,462
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 206 Posts: 2,110
206 2,110
LindaB
by LindaB
Finances
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 118 Posts: 1,329
118 1,329
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 248 Posts: 11,637
Last Post: Early Bird Club
248 11,637
Ellie
by Ellie

What's Going On?

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There are currently 198 users online. 14 members and 184 guests.

Most users ever online was 62,962 at 12:23 on 7 March 2021.

Motor Neurone Disease Association Forum Statistics

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Topics: 2,800   Posts: 47,699   Members: 1,617   Active Members: 169
Welcome to our newest member, SaraFranceys.

Today's Birthdays

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Latest Topics

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  • LindaB
    Stages of MND
    by LindaB
    I had a recent virtual consultation with my MND Consultant. I have received his letter today. He describes my diagnosis as Stage 4 MND
    To me that...
    Today, 11:59
  • Rosemary6NT
    Sheets for hospital bed
    by Rosemary6NT
    Hi everyone, I have a hospital bed arriving next week and am trying to find sheets to fit as the size is non-standard, 198cm x 88cm x 15cm. Does anyone...
    Today, 11:45
  • Suefromwakey
    Toileting
    by Suefromwakey
    Shortly we will be using the ceiling hoist to the commode/shower chair but I now wonder how to deal with the showering and toileting issue, we have a...
    Today, 11:40

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