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Directory Topics Posts Last Post
Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 63 Posts: 541
Last Post: IMPORTANT feedback!
63 541
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 326 Posts: 5,426
326 5,426
by JAC
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 983 Posts: 14,777
Last Post: Pain relief patches
983 14,777
Lynne K
by Lynne K
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 22 Posts: 222
22 222
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 236 Posts: 2,823
Last Post: Predictable App
236 2,823
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 110 Posts: 2,086
110 2,086
by Mole41
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 158 Posts: 2,017
Last Post: Amx0035
158 2,017
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 41 Posts: 395
41 395
Local support (6/68)
Daily living with MND
Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 95 Posts: 1,158
95 1,158
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 193 Posts: 1,974
Last Post: Salsa m2
193 1,974
by Nettie
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 123 Posts: 1,346
Last Post: car tax
123 1,346
Mary C
by Mary C
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 223 Posts: 9,324
Last Post: Smile
223 9,324
Lynne K
by Lynne K

What's Going On?


There are currently 277 users online. 18 members and 259 guests.

Most users ever online was 62,962 at 11:23 on 7 March 2021.

Motor Neurone Disease Association Forum Statistics


Topics: 2,573   Posts: 42,089   Members: 1,527   Active Members: 177
Welcome to our newest member, Tom Lafferty.

Today's Birthdays


Latest Topics


  • shelly21
    Pain relief patches
    by shelly21
    Hi all. Advise please. due to muscle wastage on my bum i am finding i am waking up in pain. I have an air mattress on its way, but would like peoples...
    Today, 07:26
  • matthew55
    Praise be
    by matthew55
    For vanilla flavoured Pro plus feed. The only flavour that lasts and makes reflux a pleasant experience. 😁😀🤗😍xx
    Yesterday, 16:20
  • matthew55
    Things just aren't what......
    by matthew55
    Just to confirm that MND/ASL is the Grandmaster of cruel diseases I am now at the stage where I have difficulty switching on my phone, pushing the buttons...
    Yesterday, 12:16



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