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| Welcome | ||||||
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Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 63
Posts: 540
Last Post:
IMPORTANT feedback!
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 327
Posts: 5,437
Last Post:
MND bulbar onset experience
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 967
Posts: 14,598
Last Post:
Open letter
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 22
Posts: 222
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by Admin_MND
26 August 2021, 10:06
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 235
Posts: 2,804
Last Post:
Can I ask some questions?
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235 | 2,804 |
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 109
Posts: 2,058
Last Post:
Dad Newly Diagnosed
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 157
Posts: 1,939
Last Post:
Potential Trials and Medication
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 41
Posts: 395
Last Post:
Fundraiser this weekend
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| Daily living with MND | ||||||
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Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 95
Posts: 1,149
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 192
Posts: 1,964
Last Post:
Front door
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192 | 1,964 |
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Finances
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 123
Posts: 1,346
Last Post:
car tax
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 222
Posts: 9,189
Last Post:
Queen of emoji's 💖🤴👸
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222 | 9,189 |
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There are currently 183 users online. 1 members and 182 guests.
Most users ever online was 62,962 at 11:23 on 7 March 2021.
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Yesterday two delightful district nurses changed my catheter. I now have a snazzy orange tube that has a really cool gripping action. 😎🤡🌟💕xxYesterday, 13:05
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Hi Everyone
I am looking to purchase a folding powerchair that folds itself either via button or remote. I am getting a new car soon with...20 September 2021, 15:36 -
Does anyone keep biting their cheek and lips? It's very painful and I don't seem to be able to stop it happening. Any advice anyone please?
...20 September 2021, 15:15