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Directory Topics Posts Last Post
Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 64 Posts: 545
64 545
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 326 Posts: 5,416
326 5,416
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 980 Posts: 14,754
Last Post: Bloods
980 14,754
Heather R
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 22 Posts: 222
22 222
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 235 Posts: 2,816
Last Post: I’m so terrified
235 2,816
Lynne K
by Lynne K
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 109 Posts: 2,078
Last Post: Nursing Home
109 2,078
by Ellie
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 158 Posts: 2,017
Last Post: Amx0035
158 2,017
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 41 Posts: 395
41 395
Local support (6/68)
Daily living with MND
Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 95 Posts: 1,152
95 1,152
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 193 Posts: 1,974
Last Post: Salsa m2
193 1,974
by Nettie
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 123 Posts: 1,346
Last Post: car tax
123 1,346
Mary C
by Mary C
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 223 Posts: 9,289
Last Post: Early Bird Club
223 9,289

What's Going On?


There are currently 232 users online. 12 members and 220 guests.

Most users ever online was 62,962 at 11:23 on 7 March 2021.

Motor Neurone Disease Association Forum Statistics


Topics: 2,569   Posts: 42,004   Members: 1,525   Active Members: 179
Welcome to our newest member, Stevematt13.

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Latest Topics


  • matthew55
    Crisis in Care?
    by matthew55
    I just had some disturbing news about my care agency. It seems the staff are leaving in droves but more clients are being taken on. Bottom line I won't...
    Today, 07:02
  • matthew55
    by matthew55
    I remember in my previous life watching Stephen Hawking on TV and wondering what had caused him to be the way he was. I doubt I was alone. This is the...
    Yesterday, 13:10
  • Mole41
    Carers for MND in Kent
    by Mole41
    Hi everyone,

    I was wondering if there were any other carers here on this site based in Kent who would like to connect and maybe even meet...
    Yesterday, 10:38



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