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Directory Topics Posts Last Post
Forum Announcements & Help
Having trouble with using the forum? Then post in here and Admins will answer any questions you may have.
Topics: 58 Posts: 672
Last Post: User Profile
58 672
MND Association News
Developments and news updates on the work of the MND Association.
Topics: 29 Posts: 199
29 199
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 470 Posts: 7,778
Last Post: New member
470 7,778
by Ellie
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 1,553 Posts: 23,752
1,553 23,752
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 33 Posts: 423
Last Post: My best friend
33 423
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 285 Posts: 3,378
Last Post: What Now?
285 3,378
by Ellie
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 149 Posts: 2,789
Last Post: free wills month
149 2,789
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 207 Posts: 2,502
Last Post: Good news...,
207 2,502
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 39 Posts: 382
Last Post: 80x80 Challenge
39 382
by Piglet
Local support (7/82)
Daily living with MND
Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 144 Posts: 1,859
144 1,859
by Ellie
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 250 Posts: 2,631
250 2,631
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 122 Posts: 1,361
122 1,361
by denise
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 318 Posts: 20,288
Last Post: Early Bird Club
318 20,288

What's Going On?


There are currently 194 users online. 12 members and 182 guests.

Most users ever online was 62,962 at 11:23 on 7 March 2021.

Motor Neurone Disease Association Forum Statistics


Topics: 3,657   Posts: 68,014   Members: 2,096   Active Members: 181
Welcome to our newest member, Nikki-s.

Today's Birthdays


Latest Topics


  • Stevedp
    Riluzole and ALT serum levels
    by Stevedp
    So second blood test and my alt serum level has gone up from 31 to 73, which is abnormal will this go back down? Am feeling a lot more tired hopefully...
    Today, 09:43
  • denise
    free wills month
    by denise
    hi everyone

    i dont know if anyone is interested by i came across this and i thought id share. 3rd October 2022 is the start of free wills...
    Yesterday, 10:28
  • TinyLady
    Shoulder issues
    by TinyLady
    I'm having to ask you for help because I'm at my wits end. My left arm has been weak and wasting since earlier this year and pain started in my shoulder...
    24 September 2022, 16:01



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