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Directory Topics Posts Last Post
Forum Announcements & Help
Having trouble with using the forum? Then post in here and Admins will answer any questions you may have.
Topics: 54 Posts: 616
54 616
MND Association News
Developments and news updates on the work of the MND Association.
Topics: 29 Posts: 199
29 199
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 441 Posts: 7,331
Last Post: Supplements
441 7,331
by PaulaF
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 1,471 Posts: 22,390
1,471 22,390
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 30 Posts: 361
30 361
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 270 Posts: 3,243
Last Post: Nausea and bloating
270 3,243
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 140 Posts: 2,622
Last Post: Covid carer!
140 2,622
by denise
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 198 Posts: 2,439
Last Post: Smart trial
198 2,439
by Ellie
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 38 Posts: 365
38 365
Local support (6/68)
Daily living with MND
Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 136 Posts: 1,775
Last Post: WAV Options
136 1,775
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 238 Posts: 2,464
Last Post: Geberit Toilet
238 2,464
by Bowler
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 119 Posts: 1,341
119 1,341
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 292 Posts: 17,691
Last Post: Early Bird Club
292 17,691

What's Going On?


There are currently 127 users online. 5 members and 122 guests.

Most users ever online was 62,962 at 11:23 on 7 March 2021.

Motor Neurone Disease Association Forum Statistics


Topics: 3,456   Posts: 62,837   Members: 1,978   Active Members: 187
Welcome to our newest member, cmay3.

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Latest Topics


  • Arcadian
    Decent book
    by Arcadian
    I found this small paperback to be really useful and well written:-

    Motor Neuron Disease - the facts
    by Kevin Talbot & Rachael...
    Yesterday, 19:36
  • Music man's wife
    4th Covid jab.
    by Music man's wife
    Nobody has been in touch about this for Chris so I phoned the GP. They advised me to phone 119 however they directed me to the online booking site. I've...
    Yesterday, 19:18
  • AngieCanuck
    Confusion and hope?
    by AngieCanuck
    Hi everyone!
    I had another appointment at the ALS clinic yesterday that was very unusual. My neurologist had another neurologist to review my case,...
    Yesterday, 00:30



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