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Directory Topics Posts Last Post
Forum Announcements & Help
Having trouble with using the forum? Then post in here and Admins will answer any questions you may have.
Topics: 60 Posts: 694
60 694
MND Association News
Developments and news updates on the work of the MND Association.
Topics: 29 Posts: 199
29 199
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 506 Posts: 8,178
Last Post: Hello Everyone
506 8,178
by Tony
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 1,673 Posts: 25,808
1,673 25,808
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 38 Posts: 527
38 527
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 302 Posts: 3,680
302 3,680
by gazap
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 166 Posts: 3,126
166 3,126
by Zante
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 217 Posts: 2,600
217 2,600
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 42 Posts: 428
Last Post: H&W Group
42 428
by Bowler
Local support (8/86)
Daily living with MND
Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 153 Posts: 1,983
153 1,983
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 265 Posts: 2,798
265 2,798
jim lakin
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 128 Posts: 1,409
Last Post: PIP application
128 1,409
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 336 Posts: 22,573
336 22,573

What's Going On?


There are currently 140 users online. 17 members and 123 guests.

Most users ever online was 62,962 at 12:23 on 7 March 2021.

Motor Neurone Disease Association Forum Statistics


Topics: 3,916   Posts: 74,023   Members: 2,316   Active Members: 173
Welcome to our newest member, dakota.

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Latest Topics


  • KimB
    Hello Everyone
    by KimB
    My name is Kim and I was diagnosed with ALS in 2015. I've been very slow progressing and can still walk and drive a car. I actually have a forum for...
    Yesterday, 19:24
  • Ess
    by Ess
    Hi, I'm Sarah. I'm joining the forum as you all appear supportive and knowledgeable.
    background info is that I was diagnosed with slow progressing...
    Yesterday, 17:02
  • chloe0612
    OT visit and house alterations
    by chloe0612
    Hi everyone

    I have read previous posts where others have said they have had advice from OT about whether their house is suitable for alterations...
    25 January 2023, 23:23



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