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| Welcome | ||||||
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Forum Announcements & Help
Having trouble with using the forum? Then post in here and Admins will answer any questions you may have.
Topics: 60
Posts: 694
Last Post:
Choice of reactions to posts
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MND Association News
Developments and news updates on the work of the MND Association.
Topics: 29
Posts: 199
Last Post:
Problems with our website
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29 | 199 |
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 506
Posts: 8,178
Last Post:
Hello Everyone
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506 | 8,178 |
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 1,673
Posts: 25,808
Last Post:
Building a wetroom and bedroom
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 38
Posts: 527
Last Post:
My soul mate, my husband
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 302
Posts: 3,680
Last Post:
Awaiting the inevitability
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302 | 3,680 |
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 166
Posts: 3,126
Last Post:
Too poorly for the hospice.
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166 | 3,126 |
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 217
Posts: 2,600
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 42
Posts: 428
Last Post:
H&W Group
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| Daily living with MND | ||||||
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Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 153
Posts: 1,983
Last Post:
Disability Driving Assessment
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 265
Posts: 2,798
Last Post:
millbrook healthcare
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265 | 2,798 |
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Finances
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 128
Posts: 1,409
Last Post:
PIP application
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128 | 1,409 |
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 336
Posts: 22,573
Last Post:
Wordle (for any quizzers)
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336 | 22,573 |
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There are currently 140 users online. 17 members and 123 guests.
Most users ever online was 62,962 at 12:23 on 7 March 2021.
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My name is Kim and I was diagnosed with ALS in 2015. I've been very slow progressing and can still walk and drive a car. I actually have a forum for...Yesterday, 19:24
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Hi, I'm Sarah. I'm joining the forum as you all appear supportive and knowledgeable.
background info is that I was diagnosed with slow progressing...Yesterday, 17:02 -
Hi everyone
I have read previous posts where others have said they have had advice from OT about whether their house is suitable for alterations...25 January 2023, 23:23