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Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 63
Posts: 541
Last Post:
IMPORTANT feedback!
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 326
Posts: 5,426
Last Post:
MND bulbar onset experience
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 983
Posts: 14,777
Last Post:
Pain relief patches
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 22
Posts: 222
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by Admin_MND
26 August 2021, 10:06
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 236
Posts: 2,823
Last Post:
Predictable App
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236 | 2,823 |
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 110
Posts: 2,086
Last Post:
Carers for MND in Kent
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 158
Posts: 2,017
Last Post:
Amx0035
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 41
Posts: 395
Last Post:
Fundraiser this weekend
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| Daily living with MND | ||||||
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Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 95
Posts: 1,158
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 193
Posts: 1,974
Last Post:
Salsa m2
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Finances
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 123
Posts: 1,346
Last Post:
car tax
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123 | 1,346 | ||||
| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 223
Posts: 9,324
Last Post:
Smile
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223 | 9,324 | ||||
There are currently 277 users online. 18 members and 259 guests.
Most users ever online was 62,962 at 11:23 on 7 March 2021.
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Hi all. Advise please. due to muscle wastage on my bum i am finding i am waking up in pain. I have an air mattress on its way, but would like peoples...Today, 07:26
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For vanilla flavoured Pro plus feed. The only flavour that lasts and makes reflux a pleasant experience. 😁😀🤗😍xxYesterday, 16:20
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Just to confirm that MND/ASL is the Grandmaster of cruel diseases I am now at the stage where I have difficulty switching on my phone, pushing the buttons...Yesterday, 12:16