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| Welcome | ||||||
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Forum Announcements & Help
Having trouble with using the forum? Then post in here and Admins will answer any questions you may have.
Topics: 49
Posts: 537
Last Post:
Website update
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MND Association News
Developments and news updates on the work of the MND Association.
Topics: 25
Posts: 181
Last Post:
Our membership scheme is changing...
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 352
Posts: 5,852
Last Post:
Hi, I’m Sue
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 1,100
Posts: 16,546
Last Post:
Numb tongue
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 24
Posts: 246
Last Post:
Coping with bereavement
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 238
Posts: 2,828
Last Post:
Hospice visit.
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 118
Posts: 2,272
Last Post:
Hospice visit
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118 | 2,272 |
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 163
Posts: 2,160
Last Post:
£50 Million for MND research
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 33
Posts: 324
Last Post:
Fundraiser this weekend
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| Daily living with MND | ||||||
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Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 107
Posts: 1,461
Last Post:
Wheelchair Tray
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107 | 1,461 |
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 206
Posts: 2,110
Last Post:
Right Foot Drop 🤔
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206 | 2,110 |
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Finances
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 118
Posts: 1,329
Last Post:
Retirement and company pension scheme 🤔
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118 | 1,329 |
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 246
Posts: 11,423
Last Post:
Hugs
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There are currently 213 users online. 14 members and 199 guests.
Most users ever online was 62,962 at 12:23 on 7 March 2021.
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Has anyone had this test? I asked for one as my head feels a bit "off". I'm finding decision making a bit harder (I always was a bit indecisive)...Yesterday, 13:50
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We have our first visit from our local hospice next week, not sure what to expect.26 November 2021, 20:26