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Directory Topics Posts Last Post
Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 63 Posts: 541
Last Post: IMPORTANT feedback!
63 541
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 326 Posts: 5,408
326 5,408
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 975 Posts: 14,690
Last Post: Soft food diet
975 14,690
by Ellie
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 22 Posts: 222
22 222
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 235 Posts: 2,813
Last Post: I’m so terrified
235 2,813
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 109 Posts: 2,078
Last Post: Nursing Home
109 2,078
by Ellie
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 158 Posts: 2,018
Last Post: Amx0035
158 2,018
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 41 Posts: 395
41 395
Local support (6/68)
Daily living with MND
Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 95 Posts: 1,149
95 1,149
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 193 Posts: 1,975
Last Post: Salsa m2
193 1,975
by Nettie
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 123 Posts: 1,346
Last Post: car tax
123 1,346
Mary C
by Mary C
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 223 Posts: 9,254
Last Post: Early Bird Club
223 9,254
by Ellie

What's Going On?


There are currently 181 users online. 19 members and 162 guests.

Most users ever online was 62,962 at 11:23 on 7 March 2021.

Motor Neurone Disease Association Forum Statistics


Topics: 2,563   Posts: 41,889   Members: 1,517   Active Members: 170
Welcome to our newest member, ColourPurple.

Today's Birthdays


Latest Topics


  • matthew55
    Machines that suck literally
    by matthew55
    I get mine from my community neurological team and the council delivers them. Then I get it set up by previously mentioned neuro team. Never formally...
    Today, 10:58
  • matthew55
    by matthew55
    Manhunt staring Martin Clunes on ITV. It's set in my old stamping grounds only I was there a little earlier. It's when I was in my teenage years in the...
    Yesterday, 10:11
  • House44
    by House44
    Hi all hope you’re all good, I’m having issues with swallowing saliva it feels as if it’s going down wrong hole but I have to swallow every now...
    23 September 2021, 09:36



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