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Directory Topics Posts Last Post
Forum Announcements & Help
Having trouble with using the forum? Then post in here and Admins will answer any questions you may have.
Topics: 56 Posts: 643
Last Post: Just in case kit
56 643
by MMG
MND Association News
Developments and news updates on the work of the MND Association.
Topics: 29 Posts: 199
29 199
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 460 Posts: 7,611
Last Post: New to forum
460 7,611
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 1,520 Posts: 23,226
Last Post: Having a wobble
1,520 23,226
by denise
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 32 Posts: 389
Last Post: My mum x
32 389
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 276 Posts: 3,303
Last Post: Amx0035??
276 3,303
by Stevedp
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 142 Posts: 2,649
Last Post: What next
142 2,649
by Ken
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 201 Posts: 2,450
201 2,450
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 39 Posts: 377
Last Post: 80x80 Challenge
39 377
by Ellie
Local support (7/82)
Daily living with MND
Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 139 Posts: 1,800
139 1,800
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 243 Posts: 2,550
243 2,550
by Ellie
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 120 Posts: 1,346
120 1,346
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 305 Posts: 19,218
Last Post: Early Bird Club
305 19,218
by denise

What's Going On?


There are currently 130 users online. 7 members and 123 guests.

Most users ever online was 62,962 at 11:23 on 7 March 2021.

Motor Neurone Disease Association Forum Statistics


Topics: 3,562   Posts: 65,761   Members: 2,042   Active Members: 187
Welcome to our newest member, Dopey.

Today's Birthdays


Latest Topics


  • Piglet
    Just in case kit
    by Piglet
    My husband has recently had a bit of a aspiration choking lasting on and off for two days intermittently, I contacted district nurses who visits occasionally...
    Yesterday, 19:29
  • Stevedp
    by Stevedp
    Can you make up this yourself Tudca 1000mg X2 daily with the other drug, would I be able to get this via my GP? All the best for now...
    Yesterday, 17:43
  • Doggymama
    Having a wobble
    by Doggymama
    So today my husband has been put on NIV but not sure he will tolerate it, seems a bit resistant. Wheelchair services coming out to assess him on Monday....
    15 August 2022, 21:13



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