I had a recent virtual consultation with my MND Consultant. I have received his letter today. He describes my diagnosis as Stage 4 MND
To me that...
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MND Association News
Developments and news updates on the work of the MND Association.
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Our membership scheme is changing...
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Introduce Yourself
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
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Last Post:
Sheets for hospital bed
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
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Coping with bereavement
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 238
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Hospice visit.
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 120
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Options for Chris.
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Research & Trials
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Topics: 163
Posts: 2,166
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
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Fundraiser this weekend
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| Daily living with MND | ||||||
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Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 108
Posts: 1,462
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by EvelynMW
28 November 2021, 10:47
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 206
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Right Foot Drop 🤔
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Finances
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 118
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Retirement and company pension scheme 🤔
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 248
Posts: 11,637
Last Post:
Early Bird Club
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Hi everyone, I have a hospital bed arriving next week and am trying to find sheets to fit as the size is non-standard, 198cm x 88cm x 15cm. Does anyone...Today, 11:45
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Shortly we will be using the ceiling hoist to the commode/shower chair but I now wonder how to deal with the showering and toileting issue, we have a...Today, 11:40