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| Welcome | ||||||
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Forum Announcements & Help
Having trouble with using the forum? Then post in here and Admins will answer any questions you may have.
Topics: 56
Posts: 643
Last Post:
Just in case kit
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56 | 643 |
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MND Association News
Developments and news updates on the work of the MND Association.
Topics: 29
Posts: 199
Last Post:
Problems with our website
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29 | 199 |
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 460
Posts: 7,611
Last Post:
New to forum
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460 | 7,611 |
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 1,520
Posts: 23,226
Last Post:
Having a wobble
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 32
Posts: 389
Last Post:
My mum x
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 276
Posts: 3,303
Last Post:
Amx0035??
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 142
Posts: 2,649
Last Post:
What next
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 201
Posts: 2,450
Last Post:
New promising trial started
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201 | 2,450 |
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 39
Posts: 377
Last Post:
80x80 Challenge
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| Daily living with MND | ||||||
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Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 139
Posts: 1,800
Last Post:
Losing the motorised wheelchair.
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139 | 1,800 |
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 243
Posts: 2,550
Last Post:
Which shower toilet is best?
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243 | 2,550 |
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Finances
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 120
Posts: 1,346
Last Post:
Reviewing our support grants
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120 | 1,346 |
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 305
Posts: 19,218
Last Post:
Early Bird Club
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305 | 19,218 |
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There are currently 130 users online. 7 members and 123 guests.
Most users ever online was 62,962 at 11:23 on 7 March 2021.
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My husband has recently had a bit of a aspiration choking lasting on and off for two days intermittently, I contacted district nurses who visits occasionally...Yesterday, 19:29
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Can you make up this yourself Tudca 1000mg X2 daily with the other drug, would I be able to get this via my GP? All the best for now...Yesterday, 17:43
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So today my husband has been put on NIV but not sure he will tolerate it, seems a bit resistant. Wheelchair services coming out to assess him on Monday....15 August 2022, 21:13