Hi everyone,
my name is Louise and my lovely partner of 12 years was diagnosed aged 43 last year with MND after 2 and half years of thinking...
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Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 57
Posts: 493
Last Post:
Overwhelmed Partner of MND sufferer
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 271
Posts: 4,351
Last Post:
Just diagnosed
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 742
Posts: 11,299
Last Post:
Alone
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 17
Posts: 167
Last Post:
Recording a Biography.
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 218
Posts: 2,509
Last Post:
New member with MND symptoms
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 85
Posts: 1,218
Last Post:
DAD - MND diagnosed now. What next?
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 135
Posts: 1,647
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 33
Posts: 317
Last Post:
London Marathon for MND
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| Daily living with MND | ||||||
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Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 71
Posts: 886
Last Post:
Hoist help!
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 172
Posts: 1,743
Last Post:
Keyboard
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Finances
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 116
Posts: 1,256
Last Post:
MNDA Grants
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 164
Posts: 6,241
Last Post:
Wednesday Music 5
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There are currently 151 users online. 3 members and 148 guests.
Most users ever online was 62,962 at 11:23 on 7 March 2021.
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Yesterday, 16:52
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I am a 54 year male married to my wife 30years this year I have been diagnosed with mnd after 8 months of prodding and mri scans Ii was finally diagnosed...Yesterday, 15:58
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Hi everyone.
Firstly I've been reading a lot of the threads on here and just want to say its a great community and provides a lot of well...Yesterday, 15:13