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| Welcome | ||||||
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Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 43
Posts: 312
Last Post:
Signature Keeps Dropping.
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43 | 312 |
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 210
Posts: 3,195
Last Post:
I’m new to all this
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210 | 3,195 |
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 424
Posts: 6,122
Last Post:
It never rains.
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424 | 6,122 |
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 8
Posts: 40
Last Post:
6 months on
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8 | 40 |
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 188
Posts: 2,219
Last Post:
Employing someone under £120 pw
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188 | 2,219 |
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 61
Posts: 827
Last Post:
Personal alarm suggestions?
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61 | 827 |
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 93
Posts: 1,125
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93 | 1,125 |
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 21
Posts: 191
Last Post:
Barry’s challenge
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21 | 191 |
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| Daily living with MND | ||||||
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Mobility & movement
A place for those important questions about getting around, wheelchairs, accommodation and home adaptations, transport and choosing the right vehicle.
Topics: 49
Posts: 649
Last Post:
3 or 4 wheeled scooter
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49 | 649 |
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 135
Posts: 1,384
Last Post:
Voice repair - SpeakUnique
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135 | 1,384 |
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Finances
Help with everything financial, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice and our support grants.
Topics: 107
Posts: 1,189
Last Post:
New rules for PIP assessment
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107 | 1,189 |
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 34
Posts: 2,217
Last Post:
Covoid
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34 | 2,217 | ||||
There are currently 156 users online. 11 members and 145 guests.
Most users ever online was 10,770 at 15:39 on 17 June 2020.
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This winter along with my frozen feet my hands will be icicles. Feet are easier to keep warm than hands and before anyone says I'm not wearing gloves...Today, 17:30
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So this is my first post in the Forum but I can see already how helpful this group will be.
i am 54 years old and was diagnosed 4 weeks ago...Today, 10:10 -
Probably the worst thing so far for me is that I cannot smile anymore. My face just won't do it and if I'm trying to smile I just bare my teeth. This...24 September 2020, 19:07