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| Welcome | ||||||
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Forum Announcements & Help
Having trouble with using the forum? Then post in here and Admins will answer any questions you may have.
Topics: 49
Posts: 538
Last Post:
Website update
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MND Association News
Developments and news updates on the work of the MND Association.
Topics: 25
Posts: 181
Last Post:
Our membership scheme is changing...
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 358
Posts: 5,956
Last Post:
Hi :)
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 1,125
Posts: 16,883
Last Post:
Clinic update
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 24
Posts: 246
Last Post:
Coping with bereavement
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 238
Posts: 2,833
Last Post:
I’m so terrified
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 120
Posts: 2,310
Last Post:
Potential Diagnosis for elderly father (89)
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 164
Posts: 2,193
Last Post:
£50 Million for MND research
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164 | 2,193 |
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 33
Posts: 324
Last Post:
Fundraiser this weekend
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| Daily living with MND | ||||||
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Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 108
Posts: 1,462
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108 | 1,462 |
by EvelynMW
28 November 2021, 10:47
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 206
Posts: 2,110
Last Post:
Right Foot Drop 🤔
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206 | 2,110 |
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Finances
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 118
Posts: 1,329
Last Post:
Retirement and company pension scheme 🤔
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118 | 1,329 |
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 248
Posts: 11,767
Last Post:
Early Bird Club
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248 | 11,767 |
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There are currently 143 users online. 10 members and 133 guests.
Most users ever online was 62,962 at 12:23 on 7 March 2021.
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Hi all. I’m Alex. I'm 30 years old and I was diagnosed with ALS a few months ago. My first symptom was muscle twitching, which started at the end of...Yesterday, 20:31
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I went to my three monthly clinic appointment this afternoon. The blood taken from my ear to check if my stats oxygen and carbon dioxide (re breathing...Yesterday, 18:10
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Hi
After a swallow test I am now advised to use a thickener in fluids( yuk).
How do people get on with thickened fluids…is it just another...Yesterday, 13:06