Hi
My name is Kevin. I have been diagnosed with bulbar onset ALS. My speech and swallowing are affected at this moment in time. Have had excellent...
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| Welcome | ||||||
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Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 37
Posts: 254
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 194
Posts: 3,002
Last Post:
First Post
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 369
Posts: 5,458
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 6
Posts: 11
Last Post:
Dealing with Grief and Guilt, Part 2
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 180
Posts: 2,164
Last Post:
Insurance for travel
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 53
Posts: 670
Last Post:
Telling Family
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 87
Posts: 1,100
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 18
Posts: 163
Last Post:
Ben Parkinson
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| Daily living with MND | ||||||
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Mobility & movement
A place for those important questions about getting around, wheelchairs, accommodation and home adaptations, transport and choosing the right vehicle.
Topics: 47
Posts: 640
Last Post:
Wheelchair/scooter storage
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 130
Posts: 1,355
Last Post:
Celebrity voice
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Finances
Help with everything financial, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice and our support grants.
Topics: 106
Posts: 1,182
Last Post:
Experiences of applying for welfare benefits
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 27
Posts: 2,120
Last Post:
Pma
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There are currently 239 users online. 10 members and 229 guests.
Most users ever online was 10,770 at 15:39 on 17 June 2020.
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Today, 09:02
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for a year I has speech issues and trouble wth soft pallet. I was told was rhinitis post nasal drip. A year later my arms affected and I was told had...Yesterday, 18:51
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Hi I’m just wondering if anyone else is finding communication with their consultant to be non existent and unsatisfactory? I have asked to be referred...Yesterday, 14:41