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| Welcome | ||||||
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Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 46
Posts: 345
Last Post:
Need of Predictive Text for this Forum
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46 | 345 |
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 231
Posts: 3,510
Last Post:
Worried about possible bulbar mnd
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231 | 3,510 |
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 499
Posts: 7,317
Last Post:
Riluzole
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 9
Posts: 58
Last Post:
Dealing with Grief and Guilt, Part 1
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 196
Posts: 2,261
Last Post:
Advice please - Mum possible MND
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196 | 2,261 |
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 68
Posts: 940
Last Post:
You couldn't do that for me
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 107
Posts: 1,302
Last Post:
Graham's Breakthrough
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 24
Posts: 215
Last Post:
onlinr mustc fest 27th and 28th nov
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| Daily living with MND | ||||||
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Mobility, travel & movement
A place for those important questions about travelling, wheelchairs, accommodation and home adaptations, transport and choosing the right vehicle.
Topics: 56
Posts: 706
Last Post:
Driving. When to stop
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 146
Posts: 1,481
Last Post:
Anyone got an NHS Profile Bed upstairs?
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146 | 1,481 |
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Finances
Help with everything financial, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice and our support grants.
Topics: 108
Posts: 1,190
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108 | 1,190 |
by Admin_MND
30 September 2020, 15:29
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 51
Posts: 2,622
Last Post:
Looking for Suitable Accommodation
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51 | 2,622 |
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There are currently 124 users online. 6 members and 118 guests.
Most users ever online was 10,770 at 15:39 on 17 June 2020.
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After 15 years of painstaking hard work, Graham's body announced that it has defeated MND. This announcement was made possible by the body's sleep pattern...Yesterday, 23:49
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Last night was a waking nightmare for me. I was involuntary burping my stomach contents roughly every half hour which woke me every time, add to that...Yesterday, 10:06
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Hi all I feel that since I started taking riluzole 2 months ago I’ve deteriorated lots. Does anyone know if this can happen or is it my Mnd just taking...Yesterday, 09:22