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Directory Topics Posts Last Post
Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 61 Posts: 526
61 526
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 309 Posts: 5,008
309 5,008
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 891 Posts: 13,645
Last Post: Fasciculations
891 13,645
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 21 Posts: 220
21 220
by Graham
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 233 Posts: 2,711
233 2,711
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 99 Posts: 1,774
Last Post: Ds1500
99 1,774
by denise
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 146 Posts: 1,844
Last Post: Radio 4
146 1,844
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 39 Posts: 355
39 355
Local support (6/68)
Daily living with MND
Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 88 Posts: 1,108
Last Post: Person lift for car
88 1,108
by Shirl
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 188 Posts: 1,909
188 1,909
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 121 Posts: 1,303
121 1,303
by Olicana
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 214 Posts: 8,288
214 8,288

What's Going On?


There are currently 198 users online. 14 members and 184 guests.

Most users ever online was 62,962 at 11:23 on 7 March 2021.

Motor Neurone Disease Association Forum Statistics


Topics: 2,410   Posts: 38,691   Members: 1,443   Active Members: 169
Welcome to our newest member, longval15.

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Latest Topics


  • Mary C
    by Mary C
    Does anyone experience fasciculations in stomach.?These have started lately though I have been having them in arms and legs for last year.Very...
    Today, 16:34
  • DeniseB-C
    PEG fitted for dad
    by DeniseB-C
    Hello everyone.

    Been a while since my first post.

    An update of sorts I guess. Dad had his PEG fitted yesterday, at Lane Fox...
    Yesterday, 21:10
  • Nettie
    Lift off!!
    by Nettie
    They’ve actually finished my lift today πŸ‘πŸ‘πŸ‘ I’ve had a quick go 😊 I’m not too good today got a infection in my peg site so just started...
    Yesterday, 15:21



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