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| Welcome | ||||||
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Forum Announcements & Help
Having trouble with using the forum? Then post in here and Admins will answer any questions you may have.
Topics: 60
Posts: 694
Last Post:
Choice of reactions to posts
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MND Association News
Developments and news updates on the work of the MND Association.
Topics: 29
Posts: 199
Last Post:
Problems with our website
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29 | 199 |
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 490
Posts: 8,002
Last Post:
Hello - MND & work
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490 | 8,002 |
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 1,641
Posts: 25,223
Last Post:
Finally had my 2nd opinion
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 36
Posts: 485
Last Post:
My husband Stephen
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36 | 485 |
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 293
Posts: 3,513
Last Post:
Diagnosis
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 158
Posts: 3,034
Last Post:
What a week
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158 | 3,034 |
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 212
Posts: 2,565
Last Post:
TMS & Neurofilament Light Chain research
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212 | 2,565 |
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 41
Posts: 403
Last Post:
Exertion Challenges / fundraising etc.
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41 | 403 |
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| Daily living with MND | ||||||
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Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 150
Posts: 1,948
Last Post:
New York
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150 | 1,948 |
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 260
Posts: 2,770
Last Post:
Shower chair issues
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260 | 2,770 |
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Finances
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 127
Posts: 1,401
Last Post:
Marriage benefits
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127 | 1,401 |
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 329
Posts: 21,715
Last Post:
Rant
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329 | 21,715 | ||||
There are currently 86 users online. 6 members and 80 guests.
Most users ever online was 62,962 at 12:23 on 7 March 2021.
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Hi everyone, I had a detailed clinical examination at the national hospital yesterday. Still alittle upset but knew it was coming. I have ALS , interesting...Yesterday, 22:25
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Had a really tough week, been so worried about my husband, he has been so confused particularly in the mornings, his mobility has deteriorated, our OT...Yesterday, 20:28
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I sleep on my side and wear a NIV mask at night.I turn over frequently in the night. One pillow is too low and two too high.I find myself constantly pulling...Yesterday, 15:41