Or not, as the case may be.
Why is it that I can sit up in bed reading a book for an hour, with virtually no symptoms, yet as soon as I lie...
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Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 46
Posts: 345
Last Post:
Need of Predictive Text for this Forum
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 241
Posts: 3,726
Last Post:
intoducing myself
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 570
Posts: 8,334
Last Post:
Care Homes
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 12
Posts: 88
Last Post:
Anticipatory Grief
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 205
Posts: 2,353
Last Post:
Sorry For Asking
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 75
Posts: 1,022
Last Post:
Another fall
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 123
Posts: 1,431
Last Post:
Edinburgh mnd research
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 25
Posts: 225
Last Post:
Daughter fund raising
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| Daily living with MND | ||||||
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Mobility, travel & movement
A place for those important questions about travelling, wheelchairs, accommodation and home adaptations, transport and choosing the right vehicle.
Topics: 61
Posts: 750
Last Post:
Sock review
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 153
Posts: 1,589
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Finances
Help with everything financial, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice and our support grants.
Topics: 109
Posts: 1,193
Last Post:
What can I claim other than PiP
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 89
Posts: 3,791
Last Post:
Hugs
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There are currently 168 users online. 18 members and 150 guests.
Most users ever online was 10,770 at 15:39 on 17 June 2020.
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Today, 12:19
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Another fall this morning although I did manage to stop myself falling downstairs!! 🤦🏼♀️ Lovely bruised arm and sore collarbone 🥺🥴Yesterday, 17:24
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Light switches
I have been unable for some time to reach these with my right arm and my left arm is within weeks of the same fate .
What solutions...Yesterday, 10:10