Hi all
I'm helping to look after my mum who has had mnd for three years. My step dad is her main carer. I'm currently staying in hospital with her...
No content found
Please log in to your account to view your subscribed posts.
| Directory | Topics | Posts | Last Post | |||
|---|---|---|---|---|---|---|
| Welcome | ||||||
|
Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 46
Posts: 344
Last Post:
Need of Predictive Text for this Forum
|
46 | 344 |
|
|||
|
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 224
Posts: 3,385
Last Post:
New member
|
224 | 3,385 |
|
|||
| Motor Neurone Disease General Discussion | ||||||
|
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 463
Posts: 6,844
Last Post:
Saliva problems
|
463 | 6,844 |
|
|||
|
Sub-Forums:
| ||||||
|
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 9
Posts: 55
Last Post:
Dealing with Grief and Guilt, Part 1
|
9 | 55 |
|
|||
|
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 193
Posts: 2,244
Last Post:
Twitching
|
193 | 2,244 | ||||
|
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 63
Posts: 890
Last Post:
Breathing
|
63 | 890 | ||||
|
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 99
Posts: 1,212
Last Post:
The Earswitch in MND
|
99 | 1,212 |
|
|||
|
Sub-Forums:
| ||||||
|
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 22
Posts: 206
Last Post:
fund raising
|
22 | 206 |
|
|||
|
Sub-Forums:
| ||||||
| Daily living with MND | ||||||
|
Mobility & movement
A place for those important questions about getting around, wheelchairs, accommodation and home adaptations, transport and choosing the right vehicle.
Topics: 51
Posts: 665
Last Post:
3 or 4 wheeled scooter
|
51 | 665 |
|
|||
|
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 140
Posts: 1,417
Last Post:
Sensors............the cheek of it :-)
|
140 | 1,417 |
|
|||
|
Finances
Help with everything financial, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice and our support grants.
Topics: 108
Posts: 1,190
|
108 | 1,190 |
by Admin_MND
30 September 2020, 14:29
|
|||
| Miscellaneous Discussion | ||||||
|
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 44
Posts: 2,416
Last Post:
Hugs
|
44 | 2,416 | ||||
There are currently 176 users online. 13 members and 163 guests.
Most users ever online was 10,770 at 14:39 on 17 June 2020.
-
Yesterday, 16:49
-
Hoping I can help some of you having been there, having cared basically alone for a fast and furious 14 months for my poor hubby. There was so much support...Yesterday, 16:27
-
We have shown that AMX0035 may provide patients hope and the chance to function better and live longer lives,” added Cudkowicz, also the chief of neurology...Yesterday, 11:21