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| Welcome | ||||||
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Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 45
Posts: 340
Last Post:
Need of Predictive Text for this Forum
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 220
Posts: 3,345
Last Post:
Just Diagnosed-So much to take in
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220 | 3,345 |
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 457
Posts: 6,714
Last Post:
Saliva problems
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 9
Posts: 54
Last Post:
Anticipatory Grief
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 193
Posts: 2,242
Last Post:
Twitching
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 62
Posts: 868
Last Post:
Breathing
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 97
Posts: 1,187
Last Post:
Precision medicine
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 22
Posts: 206
Last Post:
fund raising
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| Daily living with MND | ||||||
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Mobility & movement
A place for those important questions about getting around, wheelchairs, accommodation and home adaptations, transport and choosing the right vehicle.
Topics: 51
Posts: 665
Last Post:
3 or 4 wheeled scooter
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51 | 665 |
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 139
Posts: 1,411
Last Post:
Keeping food warm
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139 | 1,411 |
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Finances
Help with everything financial, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice and our support grants.
Topics: 108
Posts: 1,190
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108 | 1,190 |
by Admin_MND
30 September 2020, 15:29
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 44
Posts: 2,391
Last Post:
Hugs
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44 | 2,391 | ||||
There are currently 154 users online. 8 members and 146 guests.
Most users ever online was 10,770 at 15:39 on 17 June 2020.
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I'm just wondering if anyone gets this strange symptom. It feels like my throat and tongue suddenly move and create a burst of air that forces my cheeks...Yesterday, 12:06
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Hi
Thank you for anyone who reads and responds. I have posted here before about ongoing bodywide twitching but yesterday and today it is isolated...22 October 2020, 12:34 -
I now have three boogie boards. Who designs these things? Light blue writing on a black background? A clear button in a position that is so easy to click...22 October 2020, 09:29