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Directory Topics Posts Last Post
Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 62 Posts: 539
Last Post: Login issues
62 539
by Graham
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 326 Posts: 5,361
Last Post: Amx0035
326 5,361
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 962 Posts: 14,526
Last Post: Dvt
962 14,526
Lynne K
by Lynne K
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 22 Posts: 222
22 222
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 234 Posts: 2,777
Last Post: I’m so terrified
234 2,777
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 108 Posts: 2,040
108 2,040
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 157 Posts: 1,932
Last Post: MND Smart
157 1,932
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 41 Posts: 395
41 395
Local support (6/68)
Daily living with MND
Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 93 Posts: 1,137
Last Post: Riser/Recliner
93 1,137
by Ellie
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 192 Posts: 1,960
Last Post: Front door
192 1,960
by Tan
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 123 Posts: 1,346
Last Post: car tax
123 1,346
Mary C
by Mary C
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 221 Posts: 9,082
Last Post: Early Bird Club
221 9,082

What's Going On?


There are currently 201 users online. 16 members and 185 guests.

Most users ever online was 62,962 at 11:23 on 7 March 2021.

Motor Neurone Disease Association Forum Statistics


Topics: 2,541   Posts: 41,317   Members: 1,506   Active Members: 169
Welcome to our newest member, Ais.

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Latest Topics


  • Simonchip
    by Simonchip
    Hi members, I've heard there may be movement with the fda on amx0035 from the fda, does that mean in time to come if agreed by the fda we will be entitled...
    Today, 07:45
  • Lynne K
    Holiday time again
    by Lynne K
    We go to Robin Hoods Bay for 10 days today. Well, we’re staying a short drive away great the Bay, off the Whitby road in an adapted mobile home. We...
    Yesterday, 12:25
  • Lynne K
    MND Smart
    by Lynne K
    I’ll back onto MND Smart. First appointment with another assessment on 5th October in Salford. Fingers crossed that my assessment is successful things...
    Yesterday, 12:18



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