I was diagnosed with MND last October.
my neurologist contacted me in November to ask if he could put my name forward for the Tudca trail.
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
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Anticipatory Grief
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
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Another fall
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
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Mobility, travel & movement
A place for those important questions about travelling, wheelchairs, accommodation and home adaptations, transport and choosing the right vehicle.
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
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Finances
Help with everything financial, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice and our support grants.
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What can I claim other than PiP
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
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Hi I am thinking about having a WIFI heating thermostat HIVE or NEST which I can add light bulbs and sockets at later date. Does anyone use this to make...Yesterday, 16:48
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Hi I am thinking about having a WIFI heating thermostat HIVE or NEST which I can add light bulbs and sockets at later date. Does anyone use this to make...Yesterday, 15:06