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Directory Topics Posts Last Post
Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 63 Posts: 541
Last Post: IMPORTANT feedback!
63 541
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 326 Posts: 5,399
326 5,399
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 973 Posts: 14,639
Last Post: Pump life
973 14,639
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 22 Posts: 222
22 222
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 235 Posts: 2,807
235 2,807
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 109 Posts: 2,077
Last Post: Nursing Home
109 2,077
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 158 Posts: 2,010
Last Post: Amx0035
158 2,010
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 41 Posts: 395
41 395
Local support (6/68)
Daily living with MND
Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 95 Posts: 1,149
95 1,149
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 193 Posts: 1,975
Last Post: Salsa m2
193 1,975
by Nettie
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 123 Posts: 1,346
Last Post: car tax
123 1,346
Mary C
by Mary C
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 222 Posts: 9,208
Last Post: Smile
222 9,208
Heather R

What's Going On?


There are currently 214 users online. 17 members and 197 guests.

Most users ever online was 62,962 at 11:23 on 7 March 2021.

Motor Neurone Disease Association Forum Statistics


Topics: 2,560   Posts: 41,768   Members: 1,514   Active Members: 170
Welcome to our newest member, Dave williams.

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Latest Topics


  • matthew55
    Pump life
    by matthew55
    You know when you run at 400 you can hear the pump talking. My first one said "salt and pepper" very clearly. I'm still sorting out what my...
    Today, 07:49
  • matthew55
    by matthew55
    For information my district nurses do home bloods. Fabulous service.
    Yesterday, 15:33
  • Nettie
    Salsa m2
    by Nettie
    Hi, anybody know the weight of the Salsa m2, I need the weight so they can weigh me when I go to Salford 🤷‍♀️ Tia Janette x
    Yesterday, 15:13



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