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Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 45
Posts: 335
Last Post:
Need of Predictive Text for this Forum
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 221
Posts: 3,346
Last Post:
prescription?
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221 | 3,346 |
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 452
Posts: 6,665
Last Post:
MND On Covid vulnerable list
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 9
Posts: 54
Last Post:
Anticipatory Grief
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 192
Posts: 2,237
Last Post:
Worried
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 61
Posts: 849
Last Post:
Personal alarm suggestions?
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 97
Posts: 1,180
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 22
Posts: 206
Last Post:
fund raising
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| Daily living with MND | ||||||
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Mobility & movement
A place for those important questions about getting around, wheelchairs, accommodation and home adaptations, transport and choosing the right vehicle.
Topics: 51
Posts: 665
Last Post:
3 or 4 wheeled scooter
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 139
Posts: 1,411
Last Post:
Keeping food warm
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Finances
Help with everything financial, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice and our support grants.
Topics: 108
Posts: 1,190
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108 | 1,190 |
by Admin_MND
30 September 2020, 15:29
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 44
Posts: 2,368
Last Post:
Hugs
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44 | 2,368 | ||||
There are currently 148 users online. 1 members and 147 guests.
Most users ever online was 10,770 at 15:39 on 17 June 2020.
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Ebselen is used in USA to treat MND = anyone know how i can get it here please (also used in UK to treat covid 19)Yesterday, 23:30
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Hi
don’t know if anyone else has noticed, or if I’m just late too the game,
but I was just reading Covid rules on the app and MND is...Yesterday, 20:10 -
I've just got my first blood test results from the GP since starting Riluzole just over a month ago. The GP said my liver is 'irritated'. I've asked for...19 October 2020, 23:04