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| Welcome | ||||||
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Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 54
Posts: 422
Last Post:
Private message
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54 | 422 |
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 255
Posts: 4,038
Last Post:
First post
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255 | 4,038 |
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 666
Posts: 9,910
Last Post:
Mostly Not Dumb
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 12
Posts: 88
Last Post:
Anticipatory Grief
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12 | 88 |
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 211
Posts: 2,404
Last Post:
Scared , again
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211 | 2,404 |
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 78
Posts: 1,074
Last Post:
Buzzer happy
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 128
Posts: 1,483
Last Post:
Sheffield neurologist
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128 | 1,483 |
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 28
Posts: 259
Last Post:
Auction
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| Daily living with MND | ||||||
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Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 67
Posts: 837
Last Post:
Disability grant refused
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 162
Posts: 1,655
Last Post:
Eye gaze
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Finances
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 112
Posts: 1,228
Last Post:
Later stage costs
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112 | 1,228 |
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 121
Posts: 4,891
Last Post:
Netflix Suggestions
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121 | 4,891 |
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Most users ever online was 10,770 at 15:39 on 17 June 2020.
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Considering Professor Hawkins I have found it disturbing how many people who after talking to me express suprise that I am very intelligent. Maybe it's...Yesterday, 15:51
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Happy Friday everyone
I am on pump food overnight and am gaining too much weight. How much do you all have?
Do you mind telling me...Yesterday, 13:53 -
In a couple of hours I will be in a dentist's chair and hopefully opening the door for a way to ease the discomfort that is MND The absolute ruler of...Yesterday, 06:39