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| Welcome | ||||||
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Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 37
Posts: 254
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37 | 254 |
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 189
Posts: 2,958
Last Post:
Hi all, My first post
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189 | 2,958 |
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 366
Posts: 5,439
Last Post:
Elephants
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 6
Posts: 10
Last Post:
Dealing with Grief and Guilt, Part 3
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6 | 10 |
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 178
Posts: 2,157
Last Post:
My symptoms
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178 | 2,157 |
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 53
Posts: 662
Last Post:
Dad
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 84
Posts: 1,097
Last Post:
Dr Bedlack and reversals
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84 | 1,097 |
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 17
Posts: 161
Last Post:
John's Cycle Challenge
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17 | 161 |
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| Daily living with MND | ||||||
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Mobility & movement
A place for those important questions about getting around, wheelchairs, accommodation and home adaptations, transport and choosing the right vehicle.
Topics: 46
Posts: 637
Last Post:
Wheelchair/scooter storage
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 128
Posts: 1,351
Last Post:
Predictable app - apple v android
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128 | 1,351 |
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Finances
Help with everything financial, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice and our support grants.
Topics: 106
Posts: 1,178
Last Post:
Council tax BAND REDUCTION.
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106 | 1,178 |
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 27
Posts: 2,120
Last Post:
Pma
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27 | 2,120 | ||||
There are currently 132 users online. 4 members and 128 guests.
Most users ever online was 10,770 at 15:39 on 17 June 2020.
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I was wondering if anyone from the UK with MND has moved to a warmer climate for a care home? I'm not looking forward to winter like I used to before...Yesterday, 14:07
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One thing I have noticed as my voice fails is that people talk around me like I'm not there. Consequently I hear everything and I think talk is overrated...8 August 2020, 18:00
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Yes lovely topic!
my Mam has bulbar and her breathing has been terrible over the last few hot days, I had to call an ambulance this morning...8 August 2020, 15:35