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Directory Topics Posts Last Post
Forum Announcements & Help
Having trouble with using the forum? Then post in here and Admins will answer any questions you may have.
Topics: 61 Posts: 693
61 693
by GennyS
MND Association News
Developments and news updates on the work of the MND Association.
Topics: 30 Posts: 200
30 200
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 527 Posts: 8,511
Last Post: Introducing myself
527 8,511
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 1,730 Posts: 26,556
1,730 26,556
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 42 Posts: 589
42 589
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 313 Posts: 3,745
313 3,745
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 171 Posts: 3,189
Last Post: Proud of my Dad
171 3,189
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 224 Posts: 2,646
Last Post: Regulatory changes
224 2,646
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 46 Posts: 433
46 433
Local support (9/87)
Daily living with MND
Travel, mobility and adaptations
Getting around can have a huge impact on daily living with MND. This is a place to ask those important questions around wheelchairs, transport and vehicles, as well as home adaptations.
Topics: 154 Posts: 2,027
Last Post: Travel Insurance
154 2,027
by Geoff
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 273 Posts: 2,847
Last Post: Toe nails
273 2,847
by KimB
Help with financial support, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice, writing wills and our support grants.
Topics: 134 Posts: 1,445
Last Post: Lpoa
134 1,445
by MMG
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 354 Posts: 23,450
354 23,450

What's Going On?


There are currently 589 users online. 15 members and 574 guests.

Most users ever online was 82,169 at 02:59 on 13 March 2023.

Motor Neurone Disease Association Forum Statistics


Topics: 4,060   Posts: 76,351   Members: 2,407   Active Members: 165
Welcome to our newest member, Liz Williams.

Today's Birthdays


Latest Topics


  • Zante
    Advice on disabled facilities grant
    by Zante
    I am after some advice about disabled facilities grant etc please.

    I was contacted by the council and had the means test etc and have been...
    Today, 18:18
  • Derbyram21
    Starting on the mend
    by Derbyram21
    Good Morning My apologies for my moaning .
    I think I am on the mend ref my Sciatica bit by bit .GP finally rang me last Monday with a full apology...
    Today, 09:19
  • Jane
    Fluids and Peg
    by Jane
    I've had a Peg tube since November and started immediately with an overnight pump feed, with flushes of water before and after. Now I am struggling to...
    Yesterday, 09:14



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