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Directory Topics Posts Last Post
Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 45 Posts: 336
45 336
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 220 Posts: 3,345
220 3,345
Mary C
by Mary C
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 455 Posts: 6,683
455 6,683
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 9 Posts: 54
Last Post: Anticipatory Grief
9 54
Jeanette Pearce
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 192 Posts: 2,237
Last Post: Worried
192 2,237
by Ellie
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 62 Posts: 860
Last Post: Breathing
62 860
by Ellie
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 97 Posts: 1,182
97 1,182
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 22 Posts: 206
Last Post: fund raising
22 206
Jeanette Pearce
Local support (6/68)
Daily living with MND
Mobility & movement
A place for those important questions about getting around, wheelchairs, accommodation and home adaptations, transport and choosing the right vehicle.
Topics: 51 Posts: 665
51 665
by Ellie
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 139 Posts: 1,411
Last Post: Keeping food warm
139 1,411
by denise
Help with everything financial, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice and our support grants.
Topics: 108 Posts: 1,190
108 1,190
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 44 Posts: 2,376
Last Post: Hugs
44 2,376
Jeanette Pearce

What's Going On?


There are currently 118 users online. 2 members and 116 guests.

Most users ever online was 10,770 at 15:39 on 17 June 2020.

Motor Neurone Disease Association Forum Statistics


Topics: 1,444   Posts: 20,545   Members: 1,037   Active Members: 138
Welcome to our newest member, Boxedin.

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Latest Topics


  • Lythgoe81
    by Lythgoe81

    not long been diagnosed & still waiting for my coordinator to get in touch-I have very little information on life with MND, one thing...
    Yesterday, 15:14
  • Suefromwakey
    NHS Admin
    by Suefromwakey
    I am just about at screaming point - for the last two years my husband has undergone so many tests - all of you will have had these no doubt - but he's...
    Yesterday, 14:27
  • Bexxy
    by Bexxy
    Hi all

    my husband has been really struggling to breathe for a week. We thought it was a chest infection but he’s had a full course of antibiotics...
    Yesterday, 09:42



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