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| Welcome | ||||||
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Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 46
Posts: 345
Last Post:
Need of Predictive Text for this Forum
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Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 241
Posts: 3,729
Last Post:
New here
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| Motor Neurone Disease General Discussion | ||||||
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Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 577
Posts: 8,399
Last Post:
Empathy
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Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 12
Posts: 88
Last Post:
Anticipatory Grief
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12 | 88 |
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Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team.
Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 206
Posts: 2,355
Last Post:
Notifications
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206 | 2,355 |
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Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 75
Posts: 1,022
Last Post:
Another fall
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Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 123
Posts: 1,434
Last Post:
Still No Treatment or Future Cures
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Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 25
Posts: 225
Last Post:
Daughter fund raising
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| Daily living with MND | ||||||
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Mobility, travel & movement
A place for those important questions about travelling, wheelchairs, accommodation and home adaptations, transport and choosing the right vehicle.
Topics: 61
Posts: 750
Last Post:
Sock review
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61 | 750 |
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Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 154
Posts: 1,594
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Finances
Help with everything financial, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice and our support grants.
Topics: 109
Posts: 1,193
Last Post:
What can I claim other than PiP
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109 | 1,193 |
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| Miscellaneous Discussion | ||||||
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Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 91
Posts: 3,831
Last Post:
Hugs
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91 | 3,831 | ||||
There are currently 159 users online. 14 members and 145 guests.
Most users ever online was 10,770 at 15:39 on 17 June 2020.
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No one and I mean no one knows what it is like living with MND unless they themselves are living with MND. No consultant, GP, carer, health professionals...Today, 17:06
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Is there a problem with email notifications? I'm not getting any. And I know you're not here until tomorrow. 😁xToday, 15:28
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Since having my PEG fitted the area around the stoma has always been skin coloured and clean, but yesterday there was some discharge around the tube....Today, 13:23