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Directory Topics Posts Last Post
Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 37 Posts: 254
37 254
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 194 Posts: 3,001
Last Post: Newly diagnosed
194 3,001
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 369 Posts: 5,458
369 5,458
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 6 Posts: 11
6 11
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 180 Posts: 2,164
180 2,164
by Shaun
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 53 Posts: 670
Last Post: Telling Family
53 670
by denise
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 87 Posts: 1,100
87 1,100
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 18 Posts: 163
Last Post: Ben Parkinson
18 163
by Jacquij
Local support (6/68)
Daily living with MND
Mobility & movement
A place for those important questions about getting around, wheelchairs, accommodation and home adaptations, transport and choosing the right vehicle.
Topics: 47 Posts: 640
47 640
by jd58
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 130 Posts: 1,355
Last Post: Celebrity voice
130 1,355
by DeeH
Help with everything financial, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice and our support grants.
Topics: 106 Posts: 1,182
106 1,182
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 27 Posts: 2,120
Last Post: Pma
27 2,120
by DeeH

What's Going On?


There are currently 180 users online. 9 members and 171 guests.

Most users ever online was 10,770 at 15:39 on 17 June 2020.

Motor Neurone Disease Association Forum Statistics


Topics: 1,254   Posts: 18,118   Members: 924   Active Members: 144
Welcome to our newest member, LizzieP.

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Latest Topics


  • Kevinp2109
    First Post
    by Kevinp2109
    My name is Kevin. I have been diagnosed with bulbar onset ALS. My speech and swallowing are affected at this moment in time. Have had excellent...
    Today, 09:02
  • Elvisfan
    Bulbar onset
    by Elvisfan
    for a year I has speech issues and trouble wth soft pallet. I was told was rhinitis post nasal drip. A year later my arms affected and I was told had...
    Yesterday, 18:51
  • DianeO
    by DianeO
    Hi I’m just wondering if anyone else is finding communication with their consultant to be non existent and unsatisfactory? I have asked to be referred...
    Yesterday, 14:41



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