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Directory Topics Posts Last Post
Welcome
Forum Announcements & Support
Forum rules, updates, and news on the work of the Association. Having trouble with the forum? Then post in here and let us know!
Topics: 46 Posts: 342
46 342
Introduce Yourself
If you are new to the forum then why not introduce yourself here? Only include information which can be made public.
Topics: 222 Posts: 3,358
Last Post: New member
222 3,358
matthew55
Motor Neurone Disease General Discussion
Life with MND
A place to discuss life with motor neurone disease. Learn from the experience of others and share your own tips.
Topics: 461 Posts: 6,791
Last Post: PEG Life III
461 6,791
matthew55
Sub-Forums:
Living with Bereavement
We are sorry for your loss. Bereavement impacts us in unique ways and there are no right or wrong ways to grieve. In this forum you can share your experience with others experiencing, or who have experienced, grief and bereavement. This is a safe space in which to share your thoughts, concerns and maybe start to explore how to cope with your loss. We hope you find some of the help you need here.
Topics: 9 Posts: 54
Last Post: Anticipatory Grief
9 54
Jeanette Pearce
Ask MND Connect
You're not alone! Ask questions about motor neurone disease to our MND Connect team. Our team aim to answer as soon as possible. This group is covered 9 - 5 on weekdays. If you have a question, please post a new thread.
Topics: 193 Posts: 2,244
Last Post: Twitching
193 2,244
Graham
by Graham
Caring for someone with MND
A place to talk about caring (or previously cared) for a partner, family member or friend with MND.
Topics: 62 Posts: 882
Last Post: Breathing
62 882
Bexxy
by Bexxy
Research & Trials
Not all member discussion here will be scientifically proven. At the present time, the only drug that has been proven to slow the progression of MND is Riluzole.
Topics: 97 Posts: 1,192
Last Post: Precision medicine
97 1,192
Graham
by Graham
Sub-Forums:
Get involved
A place to discuss how you are getting involved with the Association whether its a campaign, fundraising, volunteering or something else. If you're in a branch or group why not share what you're up to too!
Topics: 22 Posts: 206
Last Post: fund raising
22 206
Jeanette Pearce
Sub-Forums:
Local support (6/68)
Daily living with MND
Mobility & movement
A place for those important questions about getting around, wheelchairs, accommodation and home adaptations, transport and choosing the right vehicle.
Topics: 51 Posts: 665
51 665
Ellie
by Ellie
Equipment & technology
Discussion on all equipment and technology that you've found useful. From tablets, to software and apps, or items to help you with your daily living.
Topics: 139 Posts: 1,411
Last Post: Keeping food warm
139 1,411
denise
by denise
Finances
Help with everything financial, from Disability Living Allowance (DLA) and Personal Independence Payment (PIP), to benefits advice and our support grants.
Topics: 108 Posts: 1,190
108 1,190
Miscellaneous Discussion
Off Topic
An 'off topic' area to chat about non-MND issues, tell some jokes (keep it clean!) and have some fun and games.
Topics: 44 Posts: 2,402
Last Post: Hugs
44 2,402
denise
by denise

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