[denise]

Same here. Its when you have it all set up and the alarm goes off. So you take it apart and it looks fine. We have an amika pump and a really nice back...

[Nettie]

Oh no 🤦🏼♀️ Not a good start to your day, hope it gets better ❤️ Xx

[denise]

stephens niv has been stopped. hes fine. infact he seems really well - well you know. he always complained of tiredness and now he doesnt. have to say...

[matthew55]

😀😀😀xxxx

[Mary C]

Hi Pam
well the MDT is a multi disciplinary team that may be involved in your support going forward.

As already suggested writing a...

[Lynne K]

Smashing Denise x

[denise]

I'm past caring. Making hay while the sun shines.

though anyone who says my bum looks big in those will suffer 🙄

[Shirl]

Thanks to all. Will get in touch with the MNDA and see what the outcome is.

Keep smiling all xx

[Ellie]

Hopefully they are supplied xx

[Robert Godley]

Many thanks everyone, for your encouraging words!

[Ellie]

That's excellent, I see how you can sleep comfortably without NIV.

For comparison, with NIV on overnight, my oxygen level doesn't go above...

[Lynne K]

Good luck with the second opinion appointment coming to you quickly Craig and that they get to the bottom of what’s happening to you. Lynne

[Ellie]

David, I'll add my hesitance/vehemence *against* oxygen use, especially in your home, it's a big No No...

Respiratory failure in MNDs is...

[denise]

i think it was something most of the population watched but most couldnt understand what was being said. it was scary especially the string vest, old...

[Mary C]

Hi Jody ,I know Ellie will have given you sound advise.

I really hope you can contact the local hospice or palliative care team ASAP.It’s...

[MartinB]

What an absolute nightmare, your rant is totally justified....

[matthew55]

Well he is my brother from a different mother 👍😁😍😘xx

[SallyAnnB]

I take CoQ10 on the advice of my consultant and he recommended 200mg per day.

[Graham]

This is very helpful James.

It is very similar to what I have, only I totally manage my care and run the payroll, I don't use Penderels....

[denise]

We're having problems. UK fit different to Portugal fit. I'm having to use pliers to get things apart. Nightmare. 😩