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[Sarahw]

I now have 3 ceiling hoists and love each and every one! Initially they were v reluctant to give me a stair lift as I wouldn’t last long enough (!)...

[Tabbycat]

Doug Carpenter what a traumatic experience you have had! I'm not surprised you haven't been able to concentrate on much, I should think your brain has...

[Hakuna]

Thank you. Must be what i get organised by the hospice social worker....

[Ellie]

AngieCanuck It ain't easy or conventional parenting when you have an MND, that's for sure Angie 😟

My kids were 3 and 5 when I was diagnosed,...

[Johnny5]

Immunity, Virus and the Role of Inflammation in ALS

Zoom Meeting:

https://us02web.zoom.us/j/9696329782

Password:...

[Helen T]

Ellie - thank you so much for your suggestions. He saw his GP this morning and has now been prescribed a very small dose of oramorph to try and suppress...

[Maria C]

I’m going to second those toe pads. I can not stand the feeling of my toes being curled inside shoes. They make a huge difference to me. I hope they...

[Admin_MND]

Understanding the impact of a virtual peer support programme on psychological wellbeing and caregiver burden n family caregivers of people with MND...

[Ellie]

Sarah, perhaps take a photo of the sore too and add it to your arsenal. Mention that you've got to the stage where using NIV all night is impossible and...

[Marc from London]

Hi Ian C

sorry for reading your post only now. I know pretty well what you are going through. My situation is similar. I am 45 and was diagnosed...

[LindaB]

Bowler great story….👍🏻💙...

[Sarahw]

Hi Madge! I’ve deffo had problems with many items offered - notably the NIV! (New mask delivered courtesy of nhs -result!). However, one issue with...

[Olivia H]

A smart, humerous and sassy lady....who also has mnd, and gives it a thorough ass-kicking! X

[Ellie]

John D I've been through a lot of braces John, including the Headmaster, and currently use an Ortel C3 rigid collar, which I find pretty good and, although...

[LesleyB]

Thank you everybody. Glad it’s not just me.I don’t have a feeding tube and at the moment I can swallow my food. I am 66 so can’t blame the menopause....

[TinyLady]

shelly21 - I can completely understand this. Having been totally let down and fighting for everything myself I know how draining it is and how it takes...

[TinyLady]

shelly21 - I am so upset and shocked to hear you are hitting your head against a brick wall and dealing with endless "chocolate teapots" like...

[Deb]

A warm welcome to the forum Lara

I am so sorry for your father's diagnosis. It must be even harder when he is so far away.

...

[Ellie]

Walking sandals, yes 👍 that's what mine were, I couldn't think of what to call them 🙄 xx...

[Ellie]

leaverinpeace A warm welcome to the forum family.

As with medications and radiotherapy, some people find Botox great for reducing saliva...