Unwanted equipment

[shrew]

What a carry on, its ridiculous, you must be so fed up.
Sheila x

[Sheila]

Sorry you are still in there, I can't believe it is taking so long. What a nightmare!!
Sending hugs
Sheila x

[miranda]

Sorry, Dina, i too didn't think you were serious. More hugs .

[Deb]

Oh Dina, I am speechless too.

I am sorry but when I saw your timeframes for the CHC I didn't realise you were serious. Its unbelievable!

I am not surprised you feel so low and helpless.

Sending you huge hugs too
Love Debbie x



I am not surprised you are feeling so low and helpless.

[Gillette]

I am lost for words, Dina.

Biggest hug ever.

Love Ellie.

You and me, both, Ellie. None of the doctors or other staff on the ward can believe it.

I cannot find the words to explain how difficult it is to avoid being totally subsumed by the deepest, darkest abyss. I can't praise the staff on the ward enough for their care and support.

Thank you for the hug - I need all the hugs I can get at the moment.

[Ellie]

When I get discharged home - at the moment it's likely to be Easter 2020 at the earliest...

I am lost for words, Dina.

Biggest hug ever.

Love Ellie.

[miranda]

Dear Wailywoo here’s another suggestion. Yesterday we had a flyer “Give Unwanted Items a New Home”. It’s from Scope the disability charity and they will collect for free all sorts of stuff. scope.org.uk/furniture. 0800 0113 005 . Sounds as if you are keeping busy, hope you’re ok.

[Barry52]

Hi everyone,

Whilst I don’t wish to bump this thread I would like to comment about riluzole since it was mentioned. We had a talk yesterday at our branch meeting from the deputy director of care for MNDA. Following the talk I asked if the charity is brexit ready. The answer is that they are aware that some drugs including riluzole may be difficult to source (we know this from news reports) as they are manufactured in the EU. Coupled with the manufacturing issues earlier this year it makes perfect sense for any unused and in date riluzole that is no longer required, be made available to current users. This may prove logistically difficult but maybe the care centres can help. I know this goes against advice given regarding sharing medicine but it is a practical solution in the event of a “no deal”.

Barry

[Gillette]

Terry, that's a really good point about Riluzole. I'm not sure, but I may have a few at home. When I get discharged home - at the moment it's likely to be Easter 2020 at the earliest, as mine is a Fast-Track CHC application (!) or Christmas 2021 if the application is downgraded to dead snail's pace - I will check if I have a stash and let you know.

[Wailywoo]

Trip to Dublin then Ellie, is it? Never been.....hire a van and take it all there or fit it in the car.....that would be an adventure :-)

I will look at your link, Terry, thank you for all of the information.

Hubby tried the Riluzole, only took 2 tablets and had such.a bad reaction. They took the remaining ones back! So sorry, I would definitely have sent those if he had any. It is such a worrying time as far as medicines are concerned, especially Riluzole.

Thank you again,

Wailywoo x

[Terry]

Hi Wailywoo;

There are places around the country that do take some things, try this one and they might pass you on to someone closer or deal with it themselves:- https://livewellservices.cheshireeas...y-Aware-Wilmsl

Our collection of Mobility Aids include:
- Bedroom Aids such as mattress protectors
- Grab rails
- Bed raisers and seat assists
- Walking Aids such as walking frames, walking sticks, rollators and crutches
- Bathroom Aids such as raised toilet seats, shower chairs, bath boards and commodes
- Kitchen Aids such as trolleys, cutlery, crockery, utensils and other useful accessories
- Personal Aids such as incontinence pads, dressing assistance, medication assistance and other useful accessories.


It doesn't say what they do with the items but it would be nice to know.

Don't know if you have any boxes of riluzole but I wouldn't mind any now at this uncertain time. Please PM me if you have.

Love Terry

[Ellie]

Oh I'm sorry Wailywoo but the charity I referred to is based in Dublin.

If you search online for 'Recycling Mobility Aids', a few places come up but they're not really near you in Crewe

Sometimes Lions Clubs organise collections and send out all sorts to a project they're linked with in Africa.

Sorry I can't be of more help.

Love Ellie.

[Wailywoo]

Hi Dina,

Thanks for your message and ideas. I have tried local charities and they don’t want any of it. Can’t believe they don’t take some of it back and give it a good clean up. No wonder the NHS is leaking money!

Thank you again,

Wailywoo

[Wailywoo]

Thank you Terry, I am in the Crewe area, so if they are able come up with any ideas in this area, that could be good.

Thank you for your reply.

Wailywoo

[Wailywoo]

Oh Ellie, you are the font of all knowledge and good ideas.

If you have a contact for the people who take the equipment abroad, I can’t think of a better cause for it.

I would love to help out there. They could have an unbroken commode that was only a couple of weeks old before he went into hospital. Our health service won’t take anything back only the electric bed, which they collected today and he never got to use :-(

Thank you very much for your reply.

Wailywoo x