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Not able to have powered wheelchair?

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    #16
    Barbara, that's horrific treatment of your dad!

    There are various different drive control options on a powerchair and the MNDA have special wheelchair specs with 3 manufacturers, all giving head supports etc.

    Have a read of this: https://www.mndassociation.org/suppo...chair-service/

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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      #17
      Thank you so much Ellie! My dad doesn't live in the UK and, unfortunately, some countries prefer bureaucracy over patients... However, we will get him support he needs no matter what!

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        #18
        In that case Barbara, look for a manual wheelchair with a high back for upper body and neck/head support and, preferably, can recline. Footrests should be adjustable too.

        The cheaper 'transit' manual chairs are not suitable if a person with MND is spending more than a few mins in it - they don't offer enough support.

        Often you need to buy a good cushion, backrest and head support separately, if the chair only comes with basic ones - he may get away with the basic ones for a while but we really do need proper pressure relief.

        Some 'manual' chairs come with power assistance, which are more expensive of course!

        Best wishes.

        Love Ellie.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
        Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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          #19
          Wheelchair services can fit special buttons to the controls so the user can reach them and not need to use their hand and fingers as much for the controls - my dad had very little use of his arms, hands & fingers and they were able to help him

          I would call wheelchair services and your local technology team for assistance

          Good luck 🤗

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