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    #16
    Welcome to the Forum, Janette.

    I see Terry has lectured you already about eating safely, so I won't have to

    I still eat what I can safely enjoy and use my feeding tube for my main nutrition and almost all my fluid intake.

    Just because you have a tube doesn't stop you from doing a "Pick n Mix" Woolies special on how you get your calories and fluids!!

    Has your tube site fully healed now and is behaving?

    Take care.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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      #17
      Originally posted by Ellie View Post
      Welcome to the Forum, Janette.

      I see Terry has lectured you already about eating safely, so I won't have to

      I still eat what I can safely enjoy and use my feeding tube for my main nutrition and almost all my fluid intake.

      Just because you have a tube doesn't stop you from doing a "Pick n Mix" Woolies special on how you get your calories and fluids!!

      Has your tube site fully healed now and is behaving?

      Take care.

      Love Ellie.
      Hi Ellie, I’ve adapted my way of eating quite well, just get bad days now and again, yeah my tube fully healed now it took its time though I’m not sure if it’s because they discovered hiatus hernia while they were doing the procedure love janette

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        #18
        Hi janette,
        Yes, it took a while to get use to the peg. Should of had it done earlier really, as I lost quite a Bit of weight. Which is proving hard to put back on.
        Love Sheila

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          #19
          Hi nettie will send u a message now thanks x

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            #20
            Hi nettie sorry I can’t work out to message you

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              #21
              Can someone tell me how to send a direct message to Nettie please? Trying on compose a message but when I put her user name doesn’t work

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                #22
                Hi Vicky,

                Click her name on one of her posts and it will show private message.

                Barry
                I’m going to do this even if it kills me!

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