What would a good care app include?

[denise]

Graham I found some good YouTube vids but I need to go on my laptop to download them. I don't know how to do it from my phone. 🙄

[denise]

https://www.youtube.com/watch?v=CVS1UfCfxlU&ab_channel=dannocreative

[denise]

Graham where are you? 😘

[denise]

This might be a daft point to make but after having discussions with others about how dependent we are on electricity and computers I was wondering if there is a back up plan if things go wrong. The other day my daughter went to the wrong ward and was told the computers had gone down but they thought Stephen had been discharged 2 weeks ago. Surprised me as I had visited him the day before. So is there a back up plan in place? I know there is talk about possible shortages this year and this shouldn't happen to vulnerable customers but it could happen. If your app is say able to monitor you from elsewhere are you able to summon help if this goes down?
sorry to be negative but I just thought! 😳😘

[denise]

2 years to find a bed!!? How comes? I know your carers call you princess was that to find an appropriate mattress or mattresses to cover the pea (little round green thing) not pee.

I don't want to speak out of place but it looks like we have found a placement and the nhs are already paying for the room they just need to move him in. Could happen next week. He has a large room with a view of the river tamar. Our mnd nurse used to work there and the placement contact is a really good friend of the care home manager so it looks like all the planets have lined up. Such a relief.

No video! Your standards are slipping.

Lots of snuggles and kisses 💋
xxx

[Graham]

On the contrary Denise, you have fought very hard for Stephen and good parenthood is as challenging as it ever was.

I was in Salford hospital for two years while the social services found a bed to put in my home. I fear that you will still have a lot of work to do before you will get Stephen settled in a home.

I continue to make good progress with the app and I have the emailing system sorted so that we can automate rotas and the other stuff mentioned earlier.

Love and hugs xxxx

[denise]

Me, me, me! 😘 well done you. Though I did read somewhere about a link between sport and mnd but hey next it will be something else. I used to play my brother at squash but he used to hit me more than the ball. Think he was just getting his own back because I was his big sister. 😐
cant say I excelled in anything. Know a lot about a lot of things but not a lot about anything in particular.

Why 2 years in hospital?

Love and kisses
😘

[Graham]

It was only during my 2-year stay in the hospital that I had time to brush up on my chess. Before I lost 30kg of muscle to MND, I played squash in NWCSL in Division 1, reaching the Finals of the British Closed Squash in 2007. My brother blamed me for playing too much squash causing MND but I know that this is not the case. It is just a way of thinking about leaving me to my own devices. Washing his hands of me.

Love and hugs xxxx

[denise]

Good lord Graham your manly pursuits are things to be celebrated. Are there any other amazing fetes hiding under the tinsel?

Personally I've just managed the occasional game of draughts and am routinely beaten at dominoes.

That's the first time I've watched Fraser. I've lived a sheltered life.

Love and snuggles
😘

[Graham]

I may. Did I ever tell you that I played for Team England on chess.com for 4 seasons on the top boards and even was top board on one occasion?

You are soo lucky Denise.

https://www.youtube.com/watch?v=QJfFs1KpIZg

Love and hugs xxxxx

[denise]

Love the video. At the beginning it looks more like a disaster. Graham

So you are clever, patient and queenly. Will you still speak to us mortals?

Lots of love
Xxxxx

[Graham]

Thank you ladies.

As we know, our complex care requires a lot of knowledge and the comprehensive care app is able to do that. And with it taking up to 2 weeks to see a doctor for most, the app will find a broader appeal. Yes, it is exciting Heather!

The next step is to get all of my carers using it. Each carer must create an account so that they may login, care and watch me.

Hopefully by December it will be ready for wider testing.

https://www.youtube.com/watch?v=ygBxN5UiOaM

Love and hugs xxxx

[Heather R]

Sounds exciting Graham. Forget the late queen, you are a model of perseverance x

[shelly21]

Huge well done Graham. So when can we view the app? Have you still got to protect it ?
your very clever and patient.

[denise]

Wow another reason for a party. Well done you can't wait to see what it looks like.

Hugs and snogs
Denise xxxx 🍹🍾🎉🎈