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    New eye gaze device?

    Good afternoon,

    There seems to be a new eye gaze device being launched at least in the USA – no idea if it's available in the UK nor indeed if I want it at this stage!

    Warmly


    Andy

    ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association

    "Things turn out the best for people who make the best of the way things turn out"

    #2
    Hi Andy,

    Another great tech development but a shame it’s only windows based as many of us use iOS.

    Barry
    I’m going to do this even if it kills me!

    Comment


      #3
      Hello Barry52 and @nun_head
      i am looking at getting assistive technology and will be having an assessment soon with Dr Jeff Morris EATS
      I have no idea regarding eye gaze equipment
      I know a bit about the voice banking/ messaging equipment but no idea which to go for
      My arms are deteriorating and I am now using a soft tipped pen to write this text as my fingers are very weak
      My OT is arranging the assessment with Dr Morris and asking for help from MNDa by way of loaning equipment / grant.
      I feel I should be advised on what type of equipment and not left to decide between what is available on my own without any experience...
      My voice is still ok but showing signs of changing. I am getting overwhelmed with reading all the information and still not knowing what I require / need for the best
      I have the ability to cope with this and I can still be the best person I can be. This is my life - if I am happy others around me are happy too

      Comment


        #4
        Hello Jeanette, I’ve just had a visit from environmental services, not as far along as you, but she was very helpful and set me up immediately with a few bits and bobs and loads of advice and even more importantly a direct contact so don’t have to go through any referral process, so as things develop she will come back with new gadgets (free, supplied on loan), so I hope your guy will have you up and running quickly
        shaun
        As long as there’s golf and beer I’m happy

        Comment


          #5
          [QUOTE=Jeanette Pearce;n33458]Hello Barry52 and @nun_head
          i
          I know a bit about the voice banking/ messaging equipment but no idea which to go for
          /QUOTE]

          Hi Jeanette

          In the early days there was ModelTalker. Then came Acapela, which the MNDA like. It's good. But recently I have used SpeakUnique which is very good and has helpful support. I think Barry has moved over to it too.

          Doug

          Diagnosed April 2017

          Comment


            #6
            Originally posted by Jeanette Pearce View Post
            Hello Barry52 and @nun_head
            i am looking at getting assistive technology and will be having an assessment soon with Dr Jeff Morris EATS
            I have no idea regarding eye gaze equipment
            I know a bit about the voice banking/ messaging equipment but no idea which to go for
            My arms are deteriorating and I am now using a soft tipped pen to write this text as my fingers are very weak
            My OT is arranging the assessment with Dr Morris and asking for help from MNDa by way of loaning equipment / grant.
            I feel I should be advised on what type of equipment and not left to decide between what is available on my own without any experience...
            My voice is still ok but showing signs of changing. I am getting overwhelmed with reading all the information and still not knowing what I require / need for the best
            Hi Jeanette,

            I use the service provided by EATS and I find them helpful. They initially supplied an iPad and downloaded my recorded voice onto the predictable app but I found limitations on using the tablet for other apps and social media because the service provider has restrictions on the system. I bought my own iPad and I now use SpeakUnique which is provided free by MNDA https://www.speakunique.co.uk/record
            Ask EATS about a button control which requires little pressure to select a letter or word. I have no experience of eyegaze but Ellie is the resident expert.

            Good luck with the assessment.

            Barry x
            I’m going to do this even if it kills me!

            Comment


              #7
              Jeanette Pearce Yes, it can be overwhelming, Jeanette, but the EATS team will know what will or will not work for you, and will guide you appropriately.

              The thoughts of assistive tech is daunting/horrible/frustrating but it will reopen access to parts of your world which would otherwise be lost to you.

              If you can bring someone to the appt with you, they can take notes and be another pair of eyes and ears for recall!

              Love Ellie.
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              Comment


                #8
                Hi Jeanette, I have just recorded my voice with SpeakUnique, paid for by MNDA, and am awaiting my assistive technology adviser to come back and look at best app to use the voice on. My daughter says my new voice sounds posh, and I think she's right! Had to read 300 sentences, which I did in chunks, as quite a strain having to articulate the words. You can choose between different authors to read from. I chose Beatrix Potter for better or worse. It was fun in a way. Hope you get good help and advice x
                Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

                Comment


                  #9
                  Hi Jeanette Pearce . Have a look a the thread I started.

                  https://forum.mndassociation.org/for...ir-speakunique
                  Each day is made easier with a bit of humour.

                  Comment


                    #10
                    Originally posted by Heather R View Post
                    Hi Jeanette, I have just recorded my voice with SpeakUnique, paid for by MNDA, and am awaiting my assistive technology adviser to come back and look at best app to use the voice on. My daughter says my new voice sounds posh, and I think she's right! Had to read 300 sentences, which I did in chunks, as quite a strain having to articulate the words. You can choose between different authors to read from. I chose Beatrix Potter for better or worse. It was fun in a way. Hope you get good help and advice x
                    Hi Heather,

                    Just to let you know that SpeakUnique have their own app which works with android or iOS. My family thinks my recorded voice is my business speech. Being a Geordie I learned to tone my accent down so that my clients could understand. Funny how now I would give anything for a voice regardless of accent.

                    Best wishes,
                    Barry
                    I’m going to do this even if it kills me!

                    Comment


                      #11
                      Andy, I clicked on your link and it was a UK site with a ballpark figure of £1349 (if my memory serves me). My predictable voice sounds like a scouce darlik since the last update a few months ago. They know about this and I’m waiting on a fix. Lynne
                      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                      I'm staying positive and taking each day as it comes.

                      Comment


                        #12
                        Thank you everyone
                        I have gone with Speak Unique
                        xxx hugs xxx
                        I have the ability to cope with this and I can still be the best person I can be. This is my life - if I am happy others around me are happy too

                        Comment


                          #13
                          My wife had a demo with this yesterday with her SLT. What an amazing piece of kit it appears to be. Next issue I am sure will be funding but we are hopeful of it coming through as her voice is really starting to go .

                          Comment

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