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    Mechanical aids.

    I know there are machines to help you cough or breathe but is there one to blow your nose? That's what I would pay good money for. 😀x

    #2
    Why can't you blow your nose? 😶

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      #3
      Bulbar onset MND my version 😀x

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        #4
        Me too mate - and I don't have hands to mop the flow with tissues, most undignifying to look like a toddler 😤

        I have no sniff ability so someone sprays a sea water spray up a nostril, then wipes, repeats for other nostril.

        There are nasal washes you can get but, for those of us with bulbar issues, I expect it's like being waterboarded, not to mention dangerous.

        You have a neb, I think? Is that any use?

        Love Ellie.

        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #5
          Well I'm getting another over night breath test soon so it may be in my future 👍x

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            #6
            Originally posted by matthew55 View Post
            it may be in my future
            What, a neb? Put your chocolate teapot community nurse to the test and ask her for one. Use saline in it.

            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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