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    Head Support

    I have dropped head syndrome and have yet to find a head support/neck brace that I can wear for any length of time. I have seen the Drop Head Support from U.S. outfit Neck Solutions . Does anyone know if this is available in the U.K.? I contacted the company in the U. S. but they were unhelpful..
    Neck Pain Relief Using Home Treatment Solutions Like Pillows, Supports, Collars, Braces, Traction & Muscle Therapy For Pain Relief & Support

    #2
    Welcome to the Forum, David.

    Have you contacted the Looking Forward Head Support System company directly, rather than Neck Solutions?

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Ellie,

      Thank you. I have just looked them up on the web.

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        #4
        Hi David, I got one of these supplied through my splint workshop at my local hospital https://www.talarmade.com/products/headup-collar/

        not sure if it’s the sort of thing you’re looking for or not?
        Take care,
        James

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          #5
          Hi my husband had an Oxford Lee support, it was a strap that went around the forehead and a support which run down his spine and strapped around his waist. This support allowed my husband the privilege of traveling and living life a little easier. We tried the Head Up Collar but that didn’t help.

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            #6
            Hi David. My neck is a constant for me so sleeping is my only peace. I'm also getting a neck brace professionally made so I will let you know how that goes. 😁👍x
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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              #7
              I’m really interested to hear what people find helpful, as I too am finding the pain in my neck difficult to deal with and is making life harder with my head dropping down. I was given a memory foam collar last week but it does not really help and I hate having something around my neck.

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                #8
                Jacqui, don't give up on a neck support - there are lots of options available! Please ask the OT or physiotherapist for different types.

                Neck pain can be very debilitating...

                Love Ellie.
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                  #9
                  Has anyone tried to use The Looking forward head support or cap?

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                    #10
                    Sarah, I tried a DIY version of the band about 2yrs ago when my back, neck & shoulders were a bit stronger, but never got past 15mins-ish because of back pain. Also, I found it had to be quite tight around my torso or my head would slowly droop, so the overall feel wasn't that comfortable.

                    Maybe give it a try - we're all so different it may well work for you.
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                      #11
                      Ellie, thanks for the encouragement I won’t give up, just having a bad day

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