New RIG/PEG tube: how to stop it snagging on things

[JasperC]

Hi all,

new to the forums and writing on behalf of my Mum Jacky (71). She is not new to MND as her own Mum had it, but may take a while to get on to these forums by herself.

She recently had a RIG fitted (2 weeks ago), but is not getting on with the tube at all. We've tried taping it, using the recommended Grip-Lock thingy, and we know that when the stoma has formed she can have a shorter one fitted. But I would love her to be more comfortable.

Is there any particular product that people recommend to help keep it out of the way?

Many thanks,

jasper

[matthew55]

I use a catheter holder that sits below the site and the business end tucks away safely. No breakages since using one. 😁x

[Nettie]

I just tuck mine in my knickers 🤗

[Ellie]

Welcome Jasper & Jacky - sorry to hear that MND is in your family.

There are tube- holding pouches which are like a little purse on a belt and go around the tummy, but it's best not to cover the stoma site - air should be free to circulate around it. As you can see, people found other solutions too!

Like you say, the long tube can be swapped for a button, once the tract is fully formed, but in the meantime hopefully a workable solution of taming the long tube can be found.

Love Ellie.

[matthew55]

That's how I had two break. The end would get caught and pulling it gradually weakens the joints. The catheter holder is not noticeable after a short time. Oh and they are machine washable. 👍x

[JasperC]

Many thanks to you all, some really useful tips. Think we will try a catheter holder now and see how we get on. Knickers sadly not an option as they've sited the RIG really high (to the degree that bras are unwearable: but that's another whole question!).

[Lynne K]

Not good that the RIG was sited so high that bras cannot be worn. That would cause me discomfort and effect how I felt emotionally. This is something that I will discuss before I ever have this procedure. I hope that one or other suggestion works for your mum Jasper. Lynne