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New RIG/PEG tube: how to stop it snagging on things

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    New RIG/PEG tube: how to stop it snagging on things

    Hi all,

    new to the forums and writing on behalf of my Mum Jacky (71). She is not new to MND as her own Mum had it, but may take a while to get on to these forums by herself.

    She recently had a RIG fitted (2 weeks ago), but is not getting on with the tube at all. We've tried taping it, using the recommended Grip-Lock thingy, and we know that when the stoma has formed she can have a shorter one fitted. But I would love her to be more comfortable.

    Is there any particular product that people recommend to help keep it out of the way?

    Many thanks,

    jasper

    #2
    I use a catheter holder that sits below the site and the business end tucks away safely. No breakages since using one. 😁x

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      #3
      I just tuck mine in my knickers 🤗
      Janette x

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        #4
        Welcome Jasper & Jacky - sorry to hear that MND is in your family.

        There are tube- holding pouches which are like a little purse on a belt and go around the tummy, but it's best not to cover the stoma site - air should be free to circulate around it. As you can see, people found other solutions too!

        Like you say, the long tube can be swapped for a button, once the tract is fully formed, but in the meantime hopefully a workable solution of taming the long tube can be found.

        Love Ellie.

        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #5
          That's how I had two break. The end would get caught and pulling it gradually weakens the joints. The catheter holder is not noticeable after a short time. Oh and they are machine washable. 👍x

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            #6
            Many thanks to you all, some really useful tips. Think we will try a catheter holder now and see how we get on. Knickers sadly not an option as they've sited the RIG really high (to the degree that bras are unwearable: but that's another whole question!).

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              #7
              Not good that the RIG was sited so high that bras cannot be worn. That would cause me discomfort and effect how I felt emotionally. This is something that I will discuss before I ever have this procedure. I hope that one or other suggestion works for your mum Jasper. Lynne
              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

              I'm staying positive and taking each day as it comes.

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