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  • richard
    replied
    Thanks Debbie for asking. I need one for bedroom to shower. At the moment with a frame and extremely slowly I can stand and transfer to the loo.

    It’s surprising what we tell people we have never met😀

    Richard

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  • Deb
    replied
    Originally posted by richard View Post
    Deb Hi Debbie. Can you share the details about the shower chair please? Thanks

    Richard
    Hi Richard, so sorry I didn't get the name of the chair but I will find out from my OT and get back to you.

    The medical assessor who came with the OT ( I'm guessing he was a company rep !) bought some examples of shower wheel chairs and lots of catalogues. I was able to choose the cushion and foot rests. We were also able to choose the height which can be changed.

    I guess this depends on how you transfer and if you want it to go over the loo. I use a basic shower wheelchair at the moment and its very uncomfortable and flimsy for transfers.

    Love Debbie x

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  • Ellie
    replied
    Originally posted by GaryM View Post
    One more question please. Should I allow for a pressure relieving cushion on top when measuring seat height or not?
    Probably, yes. It'll be interesting how Deb 's bespoke chair dealt with that issue, but mostly the seat cushion area of the armchair don't provide enough comfort over time. I got away without an extra cushion for a good while before needing pressure relief - obvs this will vary from person to person.

    My own extra cushion, a Gelcell, is 5cm high and less when squashed by my booty, so the armrests and lumbar support are still in a good position for me in my non-bespoke, but slim sized RR.

    Some cushions are up to 10cm high, so you'd run into issues with armrest height, not upon which to rest your arms, but to stop you from being the Leaning Tower of Gary... The lumbar support isn't as vital a consideration as there are plenty of D-shaped supports available, but it is a consideration nonetheless. xx

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  • GaryM
    replied
    One more question please. Should I allow for a pressure relieving cushion on top when measuring seat height or not?

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  • richard
    replied
    Deb Hi Debbie. Can you share the details about the shower chair please? Thanks

    Richard

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  • GaryM
    replied
    Originally posted by Ellie View Post
    More fruitful appointments - woohoo 🥳🥳🥳

    Did the nurse say anything about saliva reducing meds, Gary? xx
    I forgot to ask about glyco and she didn't mention it, but I did ask about carbocisteine and she said lets try the nebulizer first and see if that helps.

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  • Deb
    replied
    That sounds productive Gary. Its amazing how we get used to talking to strangers about toileting issues! 🤣

    The G and T (not metaphorical!) is a cracking idea Ellie... Thank you. X


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  • Ellie
    replied
    More fruitful appointments - woohoo 🥳🥳🥳

    Did the nurse say anything about saliva reducing meds, Gary? xx

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  • GaryM
    replied
    Thanks for all the replies and support. The OT is getting me a belt with handles on to help Louise lift me up off the chair and it saves me getting a wedgie 😉 Also I'm getting a higher toilet seat and another commode for downstairs. The palliative care nurse is supplying a nebuliser to thin mucus.

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  • Ellie
    replied
    Wow girl, you achieved a lot today!!

    Hope you're relaxing now with a nice G&T (even if it's a metaphorical one)

    Love Ellie.

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  • Deb
    replied
    Thank you for the top tips.... My big girls pants were well aired !

    We had a long meeting with my OT and a medical company assessor. We agreed on a new tilted , padded shower wheelchair... this is height adjustable to meet my changing needs. They are changing the sides and cushions on my new riser recliner. They are going to have a portable hoist ready for when I need it and they agreed it could be operated by one careful person ( as long as he doesn't have one eye on the football ) I wasn't keen on ceiling tracks before I need them so I'm going to try a portable hoist.

    They were super helpful, although they're probably fed up with all my requests....it really pays to do your homework first and know what you want.. our forum is so valuable for information.

    Hope you got on OK today, Gary.
    Love Debbie x

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  • Lynne K
    replied
    I had a RR given to me two years ago by somebody local who’s husband had passed away from MND. She said that the MNDA had bought it or paid for it. It wasn’t right for me however. I had terrible back ache after a few minutes sat on it. I donated it to our local hospice.

    I had somebody come out to measure me from a big company. Then I bought a dual motor RR chair. Very expensive but a contribution from MNDA helped. You get what you pay for but anything for disabled people are often inflated ridiculous prices.

    Good luck tomorrow, Lynne

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  • Ellie
    replied
    Hope your Big Girl Pants are well aired for tomorrow, Debbie! There may be some retro fixes the OT can make to improve the bespoke chair.

    Good luck tomorrow x

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  • Deb
    replied
    Hi Gary,

    Its definitely worth getting a riser recliner. I tend to spend the day in my powerchair and then transfer to my riser recliner around tea time . Its always a relief to get my feet up and lie back but obviously then it is an effort to transfer again.( and I can't whizz round checking up on Stuart !)

    I was given a single motor riser recliner while a made to measure bells and whistle one was being sorted. Ironically I find the first one more comfortable... no idea why but its what works for you. My OT is coming tomorrow to discuss hoists and I am plucking up the courage to tell her this as she went to so much trouble to get it.

    Good luck tomorrow with your nurse and OT,
    Love Debbie x

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  • Bowler
    replied
    Gary I absolutely agree with Ellie. Ann didn’t suffer from pressure sores well except for the start of a small one on her heel which was quickly and easily sorted. The nurse reckoned it was mainly down to switching between wheel and recliner chairs during the day but also because we used to recline the chair in different positions during the day. I agree getting properly measured is essential as is getting the style of back and side supports to suit your needs.

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